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"SCGH bring back CF Fridges!"

About: Sir Charles Gairdner Hospital

(as the patient),

I transferred from PMH (Princess Margaret Hospital) to SCGH (Sir Charles Gairdner Hospital) when I was 18. I have Cystic Fibrosis. They had fridges for my first few admissions and they were an awesome asset the hospital had during my 2-3 week admissions. My parents would bring in food & snacks & drinks that were high in fat and protein (full cream milk, home made meals, ice creams, yoghurt, choc milk, fruit, etc.) that I could have access too all day long as I am always hungry, especially in hospital when we don’t have the normal access to whatever food we like and need for our diets. As much as the hospital tries to cater for CF patients with the menus, fridges make our admissions so much easier as we need to eat more than 3 meals a day and many of us eat all day long with little breaks in between. When sick, a lot of us lose weight, so eating often and having access to a fridge and our own food and snacks is important to our health. Since the fridges have been removed admissions have been more difficult. I can only have snacks brought in that don’t require refrigeration (fruit, biscuits etc) that don’t have much fat/protein in them and aren’t very nutritionally crucial to my CF diet to managing weight.

In 2018, I would have spent at least $300 per admission/about $25-50 per day on Uber Eats to satisfy my hunger whilst in hospital and I was in hospital at least 4 times during 2018. Understandably, this gets very expensive at the expense of taking away the fridges on G54. The kitchen closes very early and CF patients like myself can continue eating up until they go to sleep, which is sometimes quite late. Also on another note, if I were to be admitted in 2019 whilst I am breastfeeding, I would need access to a personal fridge as I need to express & store breast milk in the fridge for my young baby to have at home/whilst visiting. Without a fridge my breastfeeding journey would become incredibly difficult whilst an inpatient and may force me to stop before I am ready to. Please bring back the fridges, we need them.  

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Responses

Response from Janet Zagari, Executive Director, Sir Charles Gairdner Osborne Park Health Care Group 5 years ago
Janet Zagari
Executive Director,
Sir Charles Gairdner Osborne Park Health Care Group
Submitted on 20/03/2019 at 11:44 AM
Published on Care Opinion at 12:03 PM


picture of Janet Zagari

Dear scghcfpatientx,

Thank you very much for raising your concern about the lack of fridges available for Cystic Fibrosis patients to use. We have recently received other stories similar to yours and we are getting a group together to talk about whether there is anything further we can do. We will feedback to everyone that posted stories on Patient Opinion after that meeting.

The fridges which were available for CF patients were removed mostly due to concerns around safety issues relating to food storage. Changes to Food Safety guidelines and Infection Control policies meant that it was not possible to comply with the requirements for the management and monitoring of these fridges. There were also some challenges around the space in the rooms and making sure that staff were able to provide care safely.

As a result of your passion we will call a group together to revisit this, and I am hoping we could have some members of the CF community to be part of the problem solving strategy.

Kind regards,

Janet Zagari

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