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"Emergency Department"

About: Royal Perth Hospital / Emergency Department

(as the patient),

I presented to the Emergency Department at Royal Perth Hospital (RPH) recently. After seeing my GP with severe neck pain that morning, they had decided it was best for me to go to RPH emergency because I was in the most severe pain I’ve ever felt in my life. My GP was concerned I would need scans done to investigate why I was in such severe pain and also so that the medical staff could get my pain under control because I was very distressed and could not move without being in intense pain. I presented with a note from my GP and after crying for a long time and being unable to sit upright due to my pain they let me through so that I could lie down. 

The staff were lovely and I appreciate everything they did but I do not appreciate the way I felt they stigmatised me and treated me. They kept assuring me they would get my pain under control as I was very upset at this point. I have lived with chronic pain every day of my life for the last 5-6 years and have never presented to the emergency dept for pain.

This time my pain was so severe I was very concerned for myself and so was my GP. I have never scored my pain 10/10 but this genuinely was the worst pain I had ever felt in my life. The staff attended to me and asked me for a history and left me lying in the ED for 3 to 4 hours before they finally offered me some form of pain relief. I would never wish anyone to be treated the way I was. I believe they judged me and assumed because I have chronic pain that I am just seeking medications. Or maybe they judged me because of the way I look. Maybe it is because I was alone and vulnerable and had no one to stand up for me. I tried to stand up for myself but no one took me seriously.

I see a private pain specialist and I have my prescriptions done through them - I do not have the need to present to hospital to try and obtain medication yet I believe this is how I was seen by the staff. They kept asking me how many times I present to the ED for pain and I told them this was the first time I have ever presented to the ED for pain, and I have been living with it for the past 5 to 6 years but this is the worst pain I’ve ever felt. Yet I could tell no one was taking me seriously.

They told me we can’t offer you pain relief because you are a complex case so we need the senior doctor to review. No senior doctor ever came to review me for the 3 to 4 hours I was there. I was just left crying and wincing in pain. At this point I felt like I didn’t matter and that no one cared about how distressed I was and how much pain I was in. 

I was disgusted at how poorly I was treated. I do believe the staff are great at what they do, but in this instance I feel I was judged and I believe I was not given a chance. The number one thing, I would think, would be to get my pain under control and get me settled, and then secondly try and address and find the cause of my pain. No one took me seriously, no one listened to me and I felt I was left suffering for hours.

One nurse came up to me and gave me a heat pack and was lovely and apologised for not being able to give me any pain relief. The nurse could see how upset I was and I was so grateful for them because they were one of the ones who I felt really cared and they weren't even the nurse looking after me. 

I would not wish anyone to ever experience what I felt. Imagine lying there in a bed alone, feeling the worst pain you’d ever experienced and staff seem more concerned about asking you unnecessary questions rather than trying to help control your pain.
My GP had said that if I went to hospital they could scan my neck and get everything sorted in the one place. They refused to do any scans and finally offered me basic pain meds after 3 to 4 hours but it just wasn’t good enough. I take different medication normally and I told them that but it was like they didn’t believe me. If I had have stayed home I could have taken my regular medication and been much more comfortable there than being in the hospital and letting my pain become unbearable. But I couldn’t stay home, because I was in the worst pain and could hardly move my neck and was concerned because I had never experienced a pain like this before.
My GP also told me to go straight to ED and I got picked up from the practice and taken straight to hospital. I didn’t have time to go home and get more of my medication. I had spent the whole morning at the doctors and then straight to the emergency. Even after I voiced my concerns, I feel no one listened to me. I didn’t receive any help and ended up discharging myself because I was disgusted in the way I was treated. I have a great respect for healthcare and I know how hard it can be. I still believe the staff are amazing, but I just believe this situation was handled so poorly.
I’m not usually one to complain, but I would hate for anyone else to be treated the way I was. I do understand there are people that abuse the system, but to judge someone and make assumptions like that was so horrible. I would never wish any of them to be in the most excruciating pain they’ve ever felt and then be left laying in hospital for hours without anyone giving them pain relief or trying to help them. It is a basic human right to be treated with respect, and I did not feel this was the case. 
I really respect RPH and the amazing staff and the great work they do, but in this case, I wish I never went there and I never ever want to go back there again. If they could gain one thing from this experience, I would want them to know that the staff can think twice before judging people. We all deserve to be cared for and looked after, and when someone is in so much pain they can hardly breathe, they should think that they could safely go to hospital and be cared for and looked after.
The stigma behind chronic pain is horrible. It becomes so unbearable that some days I struggle just to get through the day. For me to go to emergency for my pain means that it is really serious to me. I would never have gone but my GP insisted that I should. This could have so easily been avoided and had a much better ending. I’m sorry I had to go through this as it was one of the worst hospital experiences I have ever had and genuinely one of the worst days of my life.
I just wish people could view it from my perspective and treat patients with respect while refraining from judgement and assumptions. I hope that next time someone presents the way I did, that they are treated the way they should be and not left ignored and suffering. 
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Responses

Response from Lesley Bennett, Chief Executive, East Metropolitan Health Service 4 years ago
Lesley Bennett
Chief Executive,
East Metropolitan Health Service
Submitted on 9/12/2019 at 6:07 PM
Published on Care Opinion on 10/12/2019 at 10:08 AM


picture of Lesley Bennett

Dear cygnuszb38,

I was distressed to read about your experience in the Emergency Department. Particularly that you felt staff didn’t listen to you, ignored you and stigmatised because you have a chronic pain condition.

Please accept my sincere apology that contact with Royal Perth Hospital left you feeling this way.

What I have read in your story is that it took a long time for staff to be able to give you pain relief and there were several barriers to this; one was waiting in the waiting room for some time, then once you were in the department for assessment you needed a senior doctor to manage your complex case and this caused another delay to effective pain management. This combined with an unhelpful line of questioning the staff used to assess your condition left you feeling unheard, uncared for, judged and let down and I am sorry for that.

I have asked for a review of the complaints and Patient Opinion stories relating to the Emergency Department services to trend any common issues to enable us to improve. Your post is one of the key stories we will use in this review to find the critical points for improvement. Therefore I appreciate the time you have taken to clearly explain the problems you faced and for detailing so well your experiences and where you feel we failed you in providing good care.

I hope you are recovering well.

Kind regards,

Dr Lesley Bennett

Executive Director

Royal Perth Bentley Group

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by cygnuszb38 (the patient)

Thank you for your response. I really appreciate you taking the time to listen to my experience and try and do something to make a difference.

Chronic pain is a horrible condition and I know there are many people who suffer from it. It can be an ‘invisible’ illness as there is no test that can be done to accurately show how much pain you are in.

I feel I need to advocate for other people like myself who are constantly made to suffer in silence. I wouldn’t wish anyone to have chronic pain, to feel pain every second of every single day. It affects all aspects of your life. Then when you have an experience like this is just breaks you to know the health system is failing you. I believe we have a right to live a pain-free life just like everyone else, and denying someone this right is just unacceptable.

If I can help at least one other person in my situation and they present to the ED and are given adequate pain relief and not judged the way I was then I would take that as a win. Even if I could help one person I would be happy. We need to advocate for others who feel they don’t have a voice. People who don’t live with chronic pain every day just don’t understand how much it beats you down and just how exhausting and debilitating it truly is. This makes it even more difficult when you have to fight for your rights to be treated with respect and receive adequate care. There is a horrible stigma attached to people who genuinely need strong pain medication just to be able to live a normal and functional life.

I have shared my story with others because it has truly left me feeling let down by our own health care system. I hope that the stigma can change and my story doesn’t become the story of someone else who presents in the same situation.

Thank you for listening to my story and taking the time to respond. If chronic pain is left untreated it takes away your will to live, in my opinion. I feel you end up losing your quality of life and the pain wears you down so much you just can't comprehend what your future will be like. These people need support and help. If our own hospitals let us down it can have devastating impacts on people suffering in pain. I do not want to see others suffering and that is my main drive to say something in the hopes that there might be a chance to change the way health professionals treat patients who present with chronic pain.

Response from Lesley Bennett, Chief Executive, East Metropolitan Health Service 4 years ago
Lesley Bennett
Chief Executive,
East Metropolitan Health Service
Submitted on 6/01/2020 at 6:56 PM
Published on Care Opinion on 7/01/2020 at 9:52 AM


picture of Lesley Bennett

Dear cygnuszb38,

I do appreciate you taking the time to share your story with us.

We will put this information to good use guiding improvements for people with chronic and complex pain conditions.

If you would like more information about our review or your specific circumstances you are welcome to contact the Consumer Engagement Unit on 9224 1637, 8 am to 4 pm, Monday to Friday or email RPBG.Feedback@health.wa.gov.au

I sincerely hope you are doing well with your health journey.

Best wishes

Dr Lesley Bennett

Executive Director

Royal Perth Bentley Group

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
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