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"My baby's ongoing health issues"

About: Perth Children's Hospital / ENT - Outpatient Clinic B

(as a parent/guardian),

My now 8 month old has had ongoing issues with their chest since November 2025. They've had at least 16 GP visits since November, with what started as Bronchiolitis, as we were told. Then it was croup, and it's been ongoing since. My baby presents as fine besides, happy little baby, eats and drinks well, so doctors find it "hard" to figure it out.  Same symptoms, every 2-3 weeks. 3 to 4 visits to ED, one admission to hospital, eventually a referral to the immunologist at PCH via telehealth, and an ENT referral to PCH. My baby's had countless doses of steroids which never help, antibiotics which never help, medicine for reflux which never helped.

We had the appointment with the immunologist via telehealth where I advised of my baby's possible egg allergy. We were told to also cut out dairy and wheat, sent for bloods, and then no response from anyone about results. I emailed the immunologist nurse asking about the results and they told me to check My Health Record. How on earth am I supposed to read blood results on My Health? I'm not a medical professional. I had to put it into ChatGPT to see if I could figure it out. From what I could tell it says my baby has no allergy to dairy or wheat but how can I be sure? What if I'm not reading it properly? I supplement with formula sometimes because sometimes my milk supply is low. So my baby's on a soy formula because of the "dairy allergy" but what is the point of this if they don't have an allergy.

It has been so frustrating, the thoughts and worry going through our heads, thinking and worrying about what m baby is and isn't intaking! As if being parents to a young baby isn't stressful as it is. We are still waiting on ENT appointment who we were referred to approx. 6 weeks ago. GP sent it two weeks late and only sent it when I followed up about it. My baby still has the chest/cough issues but their appointment apparently isn't priority enough. 

It's scary every time. We are so worried about our baby, I cried in the middle of the night this week when they woke in a fit of coughing for an hour, because I feel so helpless. My baby's had "colic" since they were 3 weeks old. Cried all day every day for months. The doctors just say it's colic and there's nothing to help. Then this happens and it makes me wonder has this been the issue since they were 3 weeks old? Who knows. We have another three year old daughter too and it's just been such a tiresome time. We live in a regional area with no family or large friend group. I haven't been able to go to my Mum and Baby group for months because I worry other babies might catch what my baby has. We just don't know what to do. It's our baby unwell every 2 to 3 weeks while we just wait!

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Responses

Response from Tony Dolan, Executive Director PCH and Neonatology, Perth Children’s Hospital 2 months ago
Tony Dolan
Executive Director PCH and Neonatology,
Perth Children’s Hospital
Submitted on 30/03/2026 at 3:47 PM
Published on Care Opinion Australia at 3:53 PM


picture of Tony Dolan

Dear octansjh67

Thank you for sharing your concerns with us. We are sorry to hear how challenging this period has been for you, especially while caring for a young family and trying to navigate your baby’s ongoing health symptoms without clear answers. It’s evident you have been doing all you can to obtain clarity and support, and we understand how overwhelming this has been.

We would appreciate the opportunity to liaise with you directly so we can look into the matters you have raised and ensure the appropriate follow‑up and support occurs. If you would like to discuss this further, we encourage you to contact the Child and Family Liaison Service by phone on 6456 0032 or by email at CAHSFeedback@health.wa.gov.au.

We look forward to hearing from you.

Warm regards

Tony

Mr Tony Dolan

Executive Director Perth Children's Hospital and Neonatology

Child and Adolescent Health Service

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