I am sharing my concern regarding the lack of follow‑up communication, coordination and continuity of care between Fiona Stanley Hospital (FSH) and King Edward Memorial Hospital (KEMH) in relation to my liver disease diagnosis at FSH in 2021 approximately one year after the insertion of a Mirena IUD at KEMH in 2020.
Background:
- I had a Mirena IUD inserted at KEMH in 2020 under general anaesthetic.
- Approximately one year later, I presented to the Emergency Department at FSH with epigastric pain and itching and subsequently diagnosed with fatty liver disease.
- Despite the seriousness of this diagnosis, there was no inter‑hospital communication or coordinated care pathway were established between FSH and KEMH, despite having the same UMRN.
- No assessment of potential hormonal influences requiring a review despite Mirena being contraindicated in liver disease.
- Poor coordination and management may have allowed further GI issues to emerge in 2025-26, rectal bleeding due to diverticulitis needing colonoscopy resulting in further findings of IBS and low-grade dysplasia in my sigmoid polyp, affecting my health trajectory at 47. My hyperbilirubinemia is still a concern. Even if they are not directly related to the IUD, it makes sense to look at the whole picture.
Concerns:
1. Failure to ensure continuity of care after a significant diagnosis. Fatty liver disease is not a trivial finding.
No alert was issued to the GP or the internal hospital system, resulting in no further investigation/ongoing risk mitigation carried out, in my opinion signalling a systemic failure in shared electronic health records.
Only follow‑up phone appointments were arranged by KEMH, which just focussed on "gynaecological progress". It is concerning that no cross‑hospital communication occurred to determine whether:
- metabolic overload and significant weight gain from the IUD required review, both contributory factors in liver disease, missed opportunities for potential early intervention
- my symptoms requiring ongoing coordinated monitoring
2. Lack of communication between FSH and KEMH
Given that:
- KEMH inserted the Mirena
- FSH later diagnosed liver disease
- both hospitals operate under WA Health
3. No follow up from KEMH since May 2025 despite a face to face appoint planned in 3 months to re-evaluate my symptoms.
The lack of inter-hospital follow‑up and communication in my case represents, in my opinion, a significant failure in their responsibilities. I request that my concerns be taken seriously and addressed promptly.
Thank you
"Lack of communication between healthcare providers"
About: Fiona Stanley Hospital / General Surgery Department & Ward 7A & Ward 7B Fiona Stanley Hospital General Surgery Department & Ward 7A & Ward 7B Murdoch 6150 King Edward Memorial Hospital / Gynaecology King Edward Memorial Hospital Gynaecology Subiaco 6008
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Responses
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