I have been a patient at KEMH since 2019 for chronic pelvic pain due to endometriosis which has upended my life. Based on my experience, your "pelvic pain team" only ever dismissed me, they straight up told me it was all in my head and that it wasn't as bad as I was making it out to be. But for 3.5 years I tried everything that they said because I thought they knew better as they were the professionals, oh how wrong it seems I was. The refusal to refer me for further investigations made it so that endo growth worsened, along with my pain and I developed atypical endometrial hyperplasia and ended up getting a hysterectomy in order to avoid endometrial cancer.
I recently had another laproscopy in order to find and excise my endo. They found what was believed to be endo in 3 places and took a biopsy of what they could.
The lack of administrative follow up in the hospital I feel is beyond ridiculous, I called them 2.5 weeks after my surgery for my biopsy results and was informed that there was no bookings for a consult regarding my results, nor for my 12 week post op follow-up appointment.
The endo team admin pushed it through for me to receive a call, on this call I felt the dr was very cold and had no empathy or compassion for what I was dealing with, I told them my pain was worse and they did not even acknowledge that or ask follow up questions. They did not answer my questions as to what else the results stated (they gave me a very brief overview which i wasn't comfortable with) and refused to send me my results, telling me I had to do an FOI (even though I've never had to previously).
I have put in a request for an FOI and was told it could take up to 3 months (in my opinion, this is unlawful and a violation of the Freedom of Information Act, which states a max of 45 days to recieve information that is requested).
The biggest problem I feel there is with KEMH is that the outward public projection that you understand and are outstanding with dealing with women with endometriosis which I feel is completely false. I believe most of your staff are completely ill-equipped to help women with chronic pain problems. Listen to the educators in your hospital! They are right there! and ensure your staff are educated and equipped to manage this condition. Also, treat your staff better and you shall retain them and maybe you won't have as many admin problems (just what I have witnessed first-hand)
"Only womens hospital in Perth"
About: King Edward Memorial Hospital / Pelvic Pain Clinic King Edward Memorial Hospital Pelvic Pain Clinic Subiaco 6008
Posted by Endosurvivor (as ),
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