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"Discharge summary and patient records at Fremantle Hospital and Sir Charles Gairdner Hospital"

About: Fremantle Hospital and Health Service / Emergency Department Sir Charles Gairdner Hospital / Acute General Medicine Sir Charles Gairdner Hospital / Neurosurgical Unit

(as the patient),

In 2007 I discovered I was deficient in Lutinising Sensitive Hormone which affected my production of available testosterone. I was given testosterone injections to help with this.

Later in 2010, a few days after one of my regular injections I had a brief episode of altered consciousness (a syncope). On this occasion I was admitted to Fremantle E D where I felt I was treated as a drunk. I hung around for a while and then I walked out.

I visited my own Dr and discovered that I had a very large aneurysm so an internal investigation was planned. Throughout my experiences with the Neurosurgery unit at Sir Charles Gairdner Hospital it was and still is, in my opinion, quite exemplary and I would highly recommend it.

However before this internal investigation took place I had another brief syncope, again a few days after my regular injection. I visited Fremantle E D again to satisfy the concerns of others.

Results of the investigation showed a calcified mass. In one professional's opinion it was untreatable and must have been there at least five years to be calcified like it was. Given my advanced age we agreed the best course for me would be to let nature take its natural course to which I was happy to agree, however, I feel I am being stopped from doing so by intervening attitudes from other agencies.

Later in 2011 I was given a new prescription of testosterone injections as my usual one was unavailable. It was soon clear to me that this medicine was infinitely stronger than what I was previously prescribed. A few days later I was cycling and when I went down I knew I was going, I just melted onto the ground. All the time I was in SCGH general medicine unit I remember asking the doctors that I think I needed a blood spec to check my Calculated Free Testosterone. I feel I was treated like a joke. I did not see any reference to my hormone deficiency or the resulting necessity for Testosterone Deficiency Therapy. This is despite my pleadings to prove I was, in my opinion, toxic on my new medication. However, I feel all my pleadings were ignored.

As soon as I was settled into the ward bed several doctors, one at a time, came in and started asking me questions. After the fourth or fifth doctor came in the nurse came over I asked which one was my doctor - I was told by the nurse that she had never seen any of them before. The next morning more doctors turned up. There were three more when I was moved to another ward. With after thought I really should have planned to call security because I believed my privacy and security were compromised. I remembered there were eight or nine doctors in total that visited me, which made me feel like a freak.

Unhappily in my experience most doctors I have encountered, since my aneurysm was discovered, seem to want to get my head into a C T scanner to have a look.

My fear is that I could be a passenger in a friend’s car and be involved in an accident, unconscious and when I get brought to the hospital the doctor would see my name and phone radiology to get them to warm up the CT scanner. I could find myself coming around with my head in a CT scanner and an untreated broken leg.

I believe that my initial diagnosis for my admission was influenced by my previous discharge summary at Fremantle Hospital ED. I have been told that all medical staff refer to past records to establish knowledge of a prospective patient which is precisely why I want my records corrected. I have written evidence to support why I want my records changed. However I have been unsuccessful so far.

All I really started out for was to get a couple of documentary changes that could suggest an alternative possibility for my rare syncope.

I have written to the consultant at SCGH about correcting my discharge summary. I feel my letter was totally ignored.

Even though Advocates and hospital spokespersons, in my experience, have been reluctant to put anything in writing (preferring the phone) I have accumulated a fistful of supporting documents. My computer competence is very limited. I really do need advice on where to go now. Thank you for listening.

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