I was recently taken from my home by ambulance to the hospital after a bout of seizures ( I am epileptic). When I came to from these seizures I was unable to form words and was very light sensitive, neither of these usually happen to me post seizure. The ambo's were very kind, as were the nurses. I was in emergency for a few hours where I had the curtain closed and a hat over my face as any light was causing me to see stars. I was then admitted to the neurology ward. The neurology team wished to discharge me two days later as it was a Friday and I would be able to go home under the care of my fiancé and rest, unfortunately for me I was still in a mask as any light was causing severe pain. I advised the team that I was unhappy with this decision and upset that for 2 days nothing had been done other than basic observations, when I thought it was clear something wasn't right as this was very unusual for my seizures. I was advised that I didn't have to like the decision and that I was being discharged and that history shows that my side effects go away over time. Yes my side effects go away over time but my usual side effect is weakness down my right and understandable drowsiness.
I was shocked and upset by their decision and requested to speak to my own neurologist, I was advised that he was away so I requested anyone else from neuro, this request was denied. I cried and I felt they decided that the best way to deal with this was to close my curtain and the door to my 4 patient room. Eventually one of the team came back and advised that they would do a CT scan to ensure I didn't have a bleed, just to be safe. After the CT scan was done no one got back to me at all until the Monday morning when I was discharged. By this point I was out of the blackout mask but was still in sunglasses. Today I still sit in a darker than normal lounge & cannot go out into the sun, even when cloudy without my sunglasses on without seeing stars, yet apparently I will recover ok. How is this normal or acceptable?
I would however love to say that some of my nurses in the neuro department, in particular Felicity, Penny, Amanda & Kylie were lovely, helpful and considerate of my needs for darkness as much as possible.
"Geelong Hospital visit"
Posted by Epileptic patient (as ),
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