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Cystic Fibrosis diet

Posted By Cf Girl

"Cystic Fibrosis diet"

About: Sir Charles Gairdner Hospital

(as the patient),

The fridges in the CF (Cystic Fibrosis) patients room have been removed.

This severly impacts my ability to keep to my diet as there are many high calorie snacks that are to be kept refridgerated.

Please reinstate the fridges into the patients room.

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Responses

Response from Janet Zagari, Executive Director, Sir Charles Gairdner Osborne Park Health Care Group 5 years ago
Janet Zagari
Executive Director,
Sir Charles Gairdner Osborne Park Health Care Group

Submitted on 20/03/2019 at 11:44 AM
Published on Care Opinion at 12:04 PM

picture of Janet Zagari

Dear Cf Girl,

Thank you very much for raising your concern about the lack of fridges available for Cystic Fibrosis patients to use. We have recently received other stories similar to yours and we are getting a group together to talk about whether there is anything further we can do. We will feedback to everyone that posted stories on Patient Opinion after that meeting.

The fridges which were available for CF patients were removed mostly due to concerns around safety issues relating to food storage. Changes to Food Safety guidelines and Infection Control policies meant that it was not possible to comply with the requirements for the management and monitoring of these fridges. There were also some challenges around the space in the rooms and making sure that staff were able to provide care safely.

As a result of your passion we will call a group together to revisit this, and I am hoping we could have some members of the CF community to be part of the problem solving strategy.

Kind regards,

Janet Zagari

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