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"Myasthenia Gravis"

About: Albany Health Campus

(as a carer),

I’m a carer for a patient who was admitted to hospital. The patient recently had an ankle operation and was very clear that they had to take certain medication. When the patient had the operation, they had to go off the tablets beforehand. 

When I went in to visit, the nurses were saying that the patient wasn’t taking their tablets. But, the patient couldn’t physically take them because they had difficulty swallowing due to a condition. The patient has a condition called Myasthenia Gravis, which prevents the muscles in the throat from working, so the patient couldn’t swallow the tablets themselves. After I told the nurses this, they said they could crush them up and put them through the nose tube, and I replied - yes do whatever it takes because they need the medication.  

The following day when I visited, the patient was sitting up in the chair and was happy and chirpy. It really makes such a difference once this patient has have their medication.  

I feel the doctor should have informed the nurses on how important it is for people with this disease to take their medication on time. The nurses didn’t seem to understand that as time was passing, the patient’s health and muscles were deteriorating, and it was becoming more difficult for the patient to take their medication due to their throat closing up.
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Responses

Response from Marie Young, Quality and Service Reform project officer, Albany Health Campus, WACHS Great Southern 5 years ago
Marie Young
Quality and Service Reform project officer, Albany Health Campus,
WACHS Great Southern
Submitted on 8/04/2019 at 6:12 PM
Published on Care Opinion on 9/04/2019 at 10:03 AM


Dear giftxg83

Thank you for sharing your story as a carer. Carers provide a valued contribution to the patient’s hospital stay, we genuinely appreciate their involvement and encourage them to speak up about issues for parts of a patient’s treatment.

During a hospital stay, a patient will be cared for by different healthcare staff at different times each relying on the other to-update care and treatment progress. It appears this underlying condition was not reliably noted for all staff to consider. I will provide your feedback to the Coordinator of Nursing and Midwifery Services so it can be used as a learning experience.

We are more than happy to follow up on your specific case if you would like to contact us on 98922647. I trust that future visits will be of the standard that you have come to expect from our service, and reflect our commitment to excellent care for our patients.

Many thanks

Juan Clark

Operations manager AHC

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