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"Caring for my parent with Alzheimer's"

About: Royal Perth Hospital / Older Adult Acute Care (Geriatric) & Ward 9A/9B

(as a relative),

My elderly parent suffers from Alzheimer's and in their mind, they are around 6 years old and living with their family overseas. Over the last year my parent has had a few visits to Royal Perth Hospital (RPH) Emergency Department (ED) with fluid on their lungs.

From the Ambulance staff and to ED I cannot fault the service, very caring and professional. I always feel my parent is in very safe hands. When they are sent to the wards is where my family and I have no confidence in my parent's personal care (not medical). It starts by us explaining my parent has Alzheimer's and the nurse then proceeds to tell my parent how to use the call button! I arrived to find their lunch sitting on a tray which was pushed away from the bed. My parent cannot walk so there is no way they could reach it or understand that it was their lunch.

I had to leave and asked the nurse to please check on my parent. My sibling arrived around 2 hours later and my parent's bed was covered in food and they were soaking wet as was their bedding. My sibling had to find help and then had to help clean and redress my parent. I feel there is a lack of understanding of what Alzheimer's is and what sort of care sufferers need. Which concerns me because we are talking about a hospital.

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Responses

Response from Lesley Bennett, Chief Executive, East Metropolitan Health Service 4 years ago
Lesley Bennett
Chief Executive,
East Metropolitan Health Service
Submitted on 31/10/2019 at 10:57 AM
Published on Care Opinion at 10:59 AM


picture of Lesley Bennett

Dear warmhp77,

Firstly, let me please apologise that we have failed to care for your parent in the manner that we strive to during their recent treatment at Royal Perth Hospital. It must have been very distressing to find your parent in the state that you did and this would have added to what would have been an already stressful experience. Patients with Alzheimer’s and Dementia are especially vulnerable and it is important that our staff understand how best to care for them and provide the higher level of supervision and care necessary.

There is extensive work being completed across the hospital in identifying and delivering a better way to care for patients living with dementia. A number of training initiatives focusing on supporting patients living with dementia and delirium are available to hospital staff. These are provided in multiple formats and can be delivered through various modalities, 24 hours a day to accommodate different shift patterns. Additionally, there are dementia change champions on the majority of our wards who support delivering best practice care, as well as teams of trained volunteers who help support patients in certain areas of the hospital. Work remains ongoing and we are committed to exploring further initiatives to raise awareness and understanding of dementia within our workforce, as well as identifying strategies that will help support the delivery of a dementia-friendly health service.

Despite the work being done, we know that occasionally there are gaps in knowledge and understanding of Alzheimer’s and Dementia and we must remain vigilant in training new staff. Your feedback has highlighted that there is still work to do in educating and providing training to both clinical and support staff. I will ensure that your feedback is brought to the attention of our senior leaders so that they can discuss it with their teams.

If you would like to provide further feedback or have a review of your parent’s treatment, I invite you to contact our Consumer Engagement Unit on 9224 1637 where our team will be able to assist you.

Again, let me please say how sorry I am that this happened in our hospital and thank you for taking the time to share this story with us so that we can learn from it.

Yours sincerely

Dr Lesley Bennett

Executive Director

Royal Perth Bentley Group

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