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"Feeling very lost"

About: Broome Health Campus Derby Hospital Royal Perth Hospital Telehealth Service - WACHS Kimberley

(as the patient),

I broke my neck towards the end of last year in a car accident between Derby and Broome in Western Australia. I got flown to Perth with the RFDS, which was all ok. I was then at Royal Perth Hospital for a week. I felt well looked after there and I left the hospital in a neck brace.

After I left Perth Hospital I felt there wasn't good follow up to my care. I didn't know how long to wear my neck brace for, what I was supposed to do or what was safe to do. I didn't have any discharge paperwork or good enough painkillers.   
After a while, I didn't know what was happening, so I just went to Derby Hospital just after Christmas to see if I could get some help. They helped me as I had lots of wounds healing on my face from the car accident, which needed cleaning up. They organised a Telehealth appointment for my wounds but not my neck bone. They still didn't tell me what I was supposed to do about my neck or give me any following plan.

About a week later after that, I ended up moving to Broome to live. I still didn't know what was happening with my neck so I came to Broome Hospital ED. They did an x-ray of my neck and organised an appointment for me with the Spinal Doctor in Perth.

I didn't have my first follow appointment with the Spinal Doctor until the just recently - nearly 4 months after my injury. Up until then I felt very lost and didn't know what was happening. I felt like the doctors were not explaining things well. Then when I finally had my Telehealth appointment on the recently, I left feeling quite upset. I felt like the Doctor blamed me for the fact that my neck hadn't healed properly - saying that I must have taken the brace off and that's why it hasn't healed.

The Doctor didn't explain what the plan was or what I should be doing. It seemed the whole appointment was very rushed- it was over in less than 5 minutes. Even though I'd waited an hour for it to start, I believe because the Doctor was very late. I felt like the doctor was just talking at me, not having a conversation with me. It seemed they spoke very fast and I didn't really understand what they were saying.

I feel really worried now that all the muscles in my neck have gotten weak and I don't know what I can do to help it.

I think it's hard trying to talk to Doctors in Perth when we live far away. The follow-up needs to be better and I felt like the doctors in Broome weren't told what was going on. I think the Perth doctors should have sent them a letter saying what was going on. 

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Responses

Response from Bec Smith, Regional Director, WACHS - Kimberley 4 years ago
Bec Smith
Regional Director,
WACHS - Kimberley
Submitted on 3/03/2020 at 8:08 PM
Published on Care Opinion on 4/03/2020 at 9:50 AM


picture of Bec Smith

Dear pavowz57,

Thank you for sharing your experience with us. It sounds as though you have been on a very complex and complicated patient journey and have had a very difficult time over the last 4 months. I am sorry that you have been left feeling lost and concerned about your ongoing care and recovery.

I would like the opportunity to know more about your patient journey by meeting with you. I would really like to hear from you, how we can improve the delivery of services particularly the Telehealth experience. I would also like to speak with you about what further support you might need from us going forward.

If you are comfortable please call me on 9195 2452. You can also email me via bec.smith@health.wa.gov.au if you prefer.

You may also find it beneficial to contact the patient feedback team at the East Metropolitan Health Service (08) 9224 1637 to share your experience with the Royal Perth Hospital. I am happy to liaise with them on your behalf if you do choose to make contact with me, as I understand it can be frustrating to re-tell your story many times.

Once again, my apologies for your patient experience and my thanks for your feedback. I do hope we talk soon as I am keen to make sure we can better meet the needs of our patients and that you receive the ongoing care and support you require.

Kind regards,

Bec Smith

Regional Director

WACHS Kimberley

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Response from Lesley Bennett, Chief Executive, East Metropolitan Health Service 4 years ago
We are preparing to make a change
Lesley Bennett
Chief Executive,
East Metropolitan Health Service
Submitted on 6/03/2020 at 7:51 PM
Published on Care Opinion on 9/03/2020 at 10:12 AM


picture of Lesley Bennett

Dear pavowz57,

Thank you for letting us know of your recent health journey and the difficulties you have encountered along the way. Discharge planning is so very important for our patients, especially when a patient has the added challenge of living in a rural or remote location. It is therefore very concerning to hear that you were discharged from Royal Perth Hospital (RPH) without your discharge paperwork or adequate pain relief and without any clear instructions in relation to your neck injury. I am very sorry this was your experience of care.

I also apologise that your recent appointment with the RPH Spinal Clinic was so unsatisfactory and did not address your concerns. Also, it is not acceptable if you felt unheard and left without fully understanding your treatment plan.

We are currently reviewing our discharge processes and I have made sure the person leading this review is aware of your feedback. In addition, I have made our Consumer Engagement Unit team aware of your story and we would appreciate the opportunity to further review your care with the spinal team as well as clarifying your treatment plan moving forward. If you are comfortable with this, I invite you to contact our Consumer Engagement Unit on 9224 1637 or at RPBG.feedback@health.wa.gov.au if you prefer to contact us by email.

Again, please accept my apology for the journey you describe and I sincerely wish you the best for your ongoing recovery.

Sincerely

Dr Lesley Bennett

Executive Director

Royal Perth Bentley Group

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