"Belated Coeliac Diagnosis"

For a long time, I could tell that my child was struggling and felt helpless as we were not near a diagnosis for anything. Over this period they were getting tired easily, suffered from an iron deficiency and was always exhausted, plus this affected their height as they were not absorbing the right nutrients. 

My child was diagnosed 6 years ago with a Coeliac disease after visiting the paediatrics doctor in Karratha. However, not one person had told us or, in my opinion, bothered to get in touch to give us the results of my child's visit.

We persisted to see a doctor again as my child was still not well and were also hoping to give them growth hormone before they grew too old to receive the hormone. We were referred to a paediatrician once again.

My child is now a teenager and we have been told that they were diagnosed 6 years ago but nothing came of it. I believe if the results were given at an earlier stage, we would have been able to provide them with the right nutrients and perhaps been able to give them a growth hormone and protect their body.

We are disappointed and angry that this important finding was not disclosed to us and that my child has continuously suffered and now they are showing signs of depression as they realise they have lost their window of opportunity.

After my child's endoscopy, the doctors revealed that there are signs of damage.