I took part in the PACE program for chronic pain and it seemed to me that my individual experiences were ignored and not taken into consideration when planning treatment.
I believe I was urged to do exercises which meant I suffered from minor joint dislocations, as I was hyper-mobile in a group of hypo-mobile peers. When I reported to have pain, I was told it was a part of the recovery (think of the saying it gets worse before it gets better).
I feel that I also had my anxieties improperly treated; a part of my fears were regarding feeling unsafe and like people were going to attack me while I slept. I was told to gradually take steps to essentially disprove this by leaving my bedroom door and curtains open.
What I felt was the dismissal of my very real problems still affects me to this day; I feel like it’s my fault that I’m in pain because I’m not doing stretches every day (part of the program was about getting into a pattern of doing the same things every day even when I felt so weak I can’t stand) and feel like I need to get used to it when I am overwhelmed because withdrawing just causes it to get worse.
"PACE program for chronic pain"
About: Perth Children's Hospital / Complex Pain Management - Clinic K Perth Children's Hospital Complex Pain Management - Clinic K Nedlands 6009
Posted by octoberjm53 (as ),
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