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"Communication on patients to their family/carers"

About: Wonthaggi Hospital / Acute Ward

(as a carer),

My partner was recently admitted into your hospital for six days waiting a transfer to another hospital for a Pacemaker. This was during the COVID19 visitor restrictions. We understood about these restrictions, although they were difficult for us, especially my partner.

The main issue I faced during this time was the lack of information that was shared to me (partner/carer and Enduring Medical Power of Attorney). My partner was overwhelmed with trying to remember everything to keep me updated on their condition. This is especially frustrating when I had previously advised the hospital that any updates needed to come to me as their Carer. After a few days, my partner stated to me that they felt that they would be forgotten re their transfer and probably should go home to die.  

I called daily - only once or twice a day so as not to overwhelm the staff - to receive all relevant information; however, it was only after breaking down in tears on the night of day three after my partner's comments and tears, that I was finally able to speak to a Doctor and receive these details.  

I am aware of the difficulties COVID has placed on both medical staff and family members as I have experienced this over the past year with numerous admissions for my partner, but still find it appalling that I get little to no information.

Why do loved ones/carers have to fight so hard to receive relevant information that I believe should be freely available/given, especially to those who are responsible for caregiving/recovery at home and who have an Enduring Medical Power of Attorney as has happened in my experience? 

During my experiences over this past year, I am now under the impression that a lot of hospital staff forget that these vulnerable patients are sent home to be cared for by their loved ones. 

I believe hospital admissions are not just about the Patients it is also about their loved ones, those who care and nurse them 24/7... something to think about!

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Responses

Response from Louise Sparkes, Deputy Chief Executive Officer, Bass Coast Health 2 years ago
Louise Sparkes
Deputy Chief Executive Officer,
Bass Coast Health
Submitted on 22/11/2021 at 3:00 PM
Published on Care Opinion at 5:03 PM


picture of Louise Sparkes

Dear Dialysis Carer,

Thank you for taking the time to provide your feedback.

I am so sorry to hear that you had so much difficulty receiving information as an Enduring Medical Power of Attorney/carer for your partner.

It is clearly a very painful time for you both and I recognise that breakdowns in communication can add to the stress both patients and their loved ones’ experience.

You have raised an important aspect of the care experience and I would really appreciate the opportunity to speak with you so that we can ensure that we can fully understand your experience and improve our communication. If you are comfortable doing so, I invite you to contact me on 0421 352 137.

I hope to hear from you soon.

Warm regards,

Louise

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