"Waiting for a consult that keeps getting moved"

After I gave birth a couple of years ago, I recall my GP put a referral in to KEMH endoscopy gyne clinic as I had been expressing a wish to have surgery to manage my pain (due to Endometriosis and adenomyosis). I believe my referral was sent, but then got passed down to my pelvic pain team who I felt weren't sure why I was speaking with them. This was early last year. I recall they sent a referral to the endoscopy clinic (again). I was in extreme pain and had been suicidal, with my ability to work decreasing and my mental wellbeing as well. I begged for another appointment with anyone and got my pelvic pain team again who as I understand it, advised they couldn't do anything except prescribe more pain killers while I wait.

My GP sent another referral detailing the decline in my wellbeing.

I got a call saying my appointment would be at the end of year (this was around the middle of the year).

I called and begged (again) for a sooner appointment and was seen a month earlier. I spoke with one of the gynes who I really liked, who sent a referral for a scan which I had around the end of the year.

I was told in the gyne appointment that I would be reviewed one or two months later at the latest, as they also put me on a pill, that I found has been an absolute nightmare, as a trial before further, more extreme treatment will be discussed.

I called to find out when my appointment was only to be told it won't be until about 5 months later. I asked if there was a cancellation list and I recall they said no. I believe I was also told that people who need the appointments get seen earlier and that a letter from my GP wouldn't do anything now.

My scan revealed Endo and Adeno in my pelvis, and my pain is continuing to become more debilitating. I have lived with this since I was a child, over half my life has been in pain with debilitating periods, and I was meant to be seen early last year for a plan to be made, only to be sitting here a year later having to wait at least another four months (not optimistic with the borders opening up and the health system already struggling).

I know it isn't any one person’s fault, but I feel multiple errors and promises have been made which leave me with no options and significant risk emotionally, physically, mentally and financially, let alone the impact my debilitation is having on my child.

Really disappointed and feeling very overwhelmed as going private is not an option financially, and I feel my life is slipping past while I wait again and again for something that I believe will probably be changed to a tele consult and/or delayed another 6 months.