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"Being mislead"

About: Box Hill Hospital / Rapid Access Lung and Thoracic Surgery Clinic

(as the patient),

Last year my local GP sent me for a ct scan as I had a persisting cough that wouldn’t go away. After the scan my GP rang me and told me I had to go to the Rapid Lung Access Clinic at Box Hill Hospital as they found something on my lung and some lymph nodes were enlarged.

So I went to the clinic and was asked to get a full body scan that would pick up any cancer in my body.

I then was booked in to get my results. My family were beside themselves for Christmas worrying what was going to happen.

When I went back to the Rapid Clinic for the results of my scans I was told there was no cancer in my body. I instantly relaxed, thank you angels. Except in the next breath, the clinician told me I will need a double lung transplant in the next 5-10 years. I went into a tailspin. Hang on, what is happening. No one had ever even hinted at this to which the clinician replied maybe they aren’t as blunt as themselves. So once again myself and my family were gutted thinking the worse because that’s what I had been told.

I recently finished with a phone appointment with my different lung doctor and I flat out asked them do I need a transplant to which they replied if I keep losing lung capacity over the next 8 years I would be in the range of needing a double lung transplant. I do not understand why that clinician told me what they did. There is being blunt and just being nasty, in my opinion. I am supposed to see them again and I don’t want to as I feel they lied to me. I question how can I trust a specialist if it seemed they lied to my face.

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Responses

Response from David Plunkett, Chief Executive, Eastern Health 2 years ago
David Plunkett
Chief Executive,
Eastern Health
Submitted on 28/03/2022 at 8:55 AM
Published on Care Opinion at 9:31 AM


picture of David Plunkett

Dear Slipped thro the cracks

Thank you for taking the time to share your experience when attending the lung clinic at Eastern Health's Box Hill Hospital. This sounds like it was an absolute roller coaster and I'm sorry it was not as positive an experience as we all would have wanted.

In order for us to follow up your particular circumstances, especially as you've mentioned you may not be comfortable to see the same clinician, I would like to invite you to contact one of our Patient Relations Advisors in the Eastern Health Centre for Patient Experience either by calling 1800 EASTERN or by emailing feedback@easternhealth.org.au.

If you choose to call please be aware that it is possible that the Patient Relations Advisors may be on another call at the time you ring and if so you will be invited to leave a message so they can return your call.

I hope we hear from you soon, and thank you again

Regards

David

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