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"Patient contact"

About: Perth Children's Hospital / Neuroscience and Neurology

(as a parent/guardian),

I received a phone call from PCH to say a bed is open for my child's appointment and that I can bring them in now. 

Not so bad except for the fact that we live about four hours away (country patient) and cant just drop everything at a moments notice as we have another child that we would need to organise care for, generally that is my parents who live another three hours away and also work. 

We also don't know what the appointment/procedures/tests that our child would be receiving as we haven't received our pediatrician reports, nor what is involved with these appointment/procedures/tests as we have had no contact from anyone to discuss. 

We were told by our pediatrician, that we would receive a pre-admission letter at least four weeks before our child's appointments at PCH. This didn't happen. I also addressed this with the staff member who made the phone call recently as they told me that they cant schedule appointments at the moment because of PCH's bed situation at the moment. I then told them that as country patient we need weeks notice for appointments so we have time to organise ourselves. 

We will not take our child for appointments/procedures/tests that we have had no consultation on. This phone call left us feeling angry, upset, confused, frustrated, unheard and misunderstood.   

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Responses

Response from Louise Keyes, Nursing Co-Director Medicine, Perth Children's Hospital, Child and Adolescent Health Service nearly 2 years ago
Louise Keyes
Nursing Co-Director Medicine, Perth Children's Hospital,
Child and Adolescent Health Service
Submitted on 14/07/2022 at 1:30 PM
Published on Care Opinion at 1:45 PM


Dear camelopardalisje75

Thank you for sharing your feedback about your experience regarding your child’s appointment/procedure/test with the Neurology Department at Perth Children’s Hospital (PCH).

On behalf of PCH, I apologise for the short notice in being notified of the bed booking for your child’s procedures and tests. Furthermore, I apologise that there has been no contact or letters from our department prior to organise this. Our staff try to accommodate patients who live regionally and coordinate appointments in advance, however, this isn’t always possible. We are working to address these problems as we know they are important for families.

We appreciate your feedback as it highlights the problems faced by families living in regional locations. Please be assured that your feedback is valued and will be used to improve our services for patients and families as we strive to meet our consumer’s needs more effectively.

Please contact our Consumer Engagement team if you have any further questions or would like to discuss the matter further on (08) 6456 0032 or at CAHSFeedback@health.wa.gov.au.

Kind regards

Louise Keyes
A/Co-Director of Medicine
Child and Adolescent Health Service

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