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"EOE treatment and follow-up"

About: Specialists in the Perth Electoral District

(as a service user),

I was diagnosed with EoE and it was discovered that it was PPI responsive. My symptoms did not completely resolve and would fluctuate in severity. I initiated a follow-up with my gastroenterologist and they performed another endoscopy to which they saw improvement to my previous scope. I questioned them as to why I would be getting these symptoms if there were no clinical signs on the endoscopy. Their response was they don't know. But they'll write me a script for prednisolone. This was directly after waking up from sedation so I did not think to question this then, but there was no explanation as to why I would need steroids, especially seeing as my scope was showing improvement.

There was no mention of trialling an elimination diet to determine possibly foods I'm reacting to (my bloods and skin prick test were negative), and there was no mention of how long I needed to stay on the PPIs for. Most importantly there was zero follow up from them afterwards, nothing. Is my GP supposed to manage this condition that I believe is barely understood by specialists? There was no instructions to my GP or myself as to what the next steps were.

I have grown up seeing my parent's specialists going against the code of conduct which is suppose to be upheld for their registration, and it is so frustrating that it seems communication is still one of the biggest issues that is still ongoing.

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