"Shocking eating disorder treatment"

I am disgusted with my experience of the eating disorder treatment in Perth. I have had anorexia nervosa for years tried to get treatment was refused and they put it down to trauma. I was officially diagnosed 2 years ago inpatient when I understand I should've died with so many cardiac complications that haven't resolved.

I'm still not getting any treatment despite trying so hard to access help and recover, I'm turned away for being too sick/ too chronic. I have cardiac issues that I understand meet WAEDOCS, high risk of refeeding syndrome and fatality. This is the deadliest mental illness and in my opinion, WA doesn't care. They're refusing to admit me so I'm having to look at interstate options in which I will be paying thousands of dollars to go somewhere alone I've never been for the hardest treatment I will ever have to do.

They completely missed my heart issues, I now have POTS, a murmur, and a very abnormal ECG plus seizures and gastroparesis. I came so close to signing a DNR two weeks ago as I felt I would never recover here due to what in my experience is a lack of eating disorder services and training in WA. I am always compliant and present by myself voluntarily every time. I attend all my appointments yet I feel I get treated like a crazy person because I'm dying of an illness. It seems I'm being refused treatment because I have trauma yet as I understand it, most eating disorder patients do and they're being treated just not me. At what point do they care? The medical complications and long term risks continue to increase becoming less likely to be reversible.

I have been to Hospital A and they turned me away despite begging them to help me. I went to Hospital B with my first set of witnessed seizures which rather than treating them and admitting me to run tests to find out what was going on I was discharged. I went to Hospital C and they told me I must be on drugs or pregnant as due to my age being under 20 I couldn't possibly have heart issues and discharged me without running any tests. I later found out the times I nearly passed out from chest pain I had quite likely had small heart attacks or pre cardiac arrest symptoms. I went to Hospital D, they took me in quickly did a blood test and shortly after discharged me. I tried to get into Hospital E for the past 2 years however I was refused multiple times stating they won't take someone with trauma or that isn't eating. I tried to get into Hospital F but they turned me away stating I in fact didn't have anorexia I am depressed and have trauma then when I was diagnosed I was 16 and now too old for their treatment.

The only good experience I have had was at Hospital G. Unfortunately they don't have a mental health ward or even a psychiatrist so it wasn't appropriate to continue treatment there however they helped with so many medical issues and I got more answers in 5 days then I have in years anywhere else.

Lastly is Hospital H which was the biggest disaster of all. I have been in and out of Hospital H for the last 2 years. The first admission was good however I don't know how much I would remember considering I had a resting heart rate of 200 and was told I wouldn't leave the hospital. After that everything went downhill my second admission they inserted an ngt. After asking for an experienced person, I understand they got a nurse who had minimal experience inserted it incorrectly resulting in me choking, going blue and having a code blue. Rather than helping, they seemed to stand there stunned until my parent intervened.

When I later complained was basically told that it wasn't a problem. After this incident they wanted to insert another ngt. I refused as I didn't want to be choked again, not having a problem with other options of refeeding. Instead I felt the Dr threatened me saying it was all in my head and was my ed talking, if I didn't comply they would form me. Just a few other incidents. I was left outside having seizures for 12 hours, my psychiatrist told me it must be anxiety, breathe into a paper bag when I understand it was a heart issue, discharged constantly even though I believe I met WAEDOCS and wasn't eating, given medications that I feel escalated things, misdiagnoses, refused a mental health advocate, asked to be treated elsewhere and they called a code black.

Outpatient wise we have 2 day-programs. Hospital E which is private and requires medical and nutritional stabilisation and Outpatient Service 1, which in my experience, was more triggering than helpful, talking about torture and trauma over the dining table.

Outpatient wise there's Outpatient Service 2 and Outpatient Service 2. Outpatient Service 2 said I was too medically unwell as did everywhere else in Perth leaving me with no options as I couldn’t be inpatient or outpatient. I recall Outpatient Service 2 encouraged me to eat until I vomited leading to purging and refeeding syndrome.

I have been to 3 other health service branches. I recall Branch 1 told me I wasn't in Syria so get over it and, in my opinion, Branch 2 couldn't be bothered treating me despite complete transparency on my end saying I don't have a role in your care (psychiatrist) and was medically not well. Good job in dismissing it I nearly died.

I went to so many GPs looking for an ED trained one, and often asked what's WAEDOCS, you have POTS, oh you do drugs and in short them completely missing the life threatening medical complications occurring.

Basically, in my experience, there is no help so I'm having to move states so I can survive because in my opinion, people either won't get trained or open new clinics and I believe people are dying because of this.