"My grandchild's care"

My oldest grandchild who has small children one being a premmie baby had three major epileptic seizures in a row. My grandchild is Epileptic but never had seizures like this before and not so severe.

We had to call 000 and the shopping centre where we were the security guards were amazing assisting and giving first aid whilst we waited for the paramedics. They were very long seizures.

The emergency staff at Rockingham hospital were amazing and it took a very long time to stabilize my grandchild and then they spent almost three days in hospital. We rushed my grandchild back the following day as they felt the signs on another impending seizure. ED was very busy. They spoke to neurology who changed their meds and said that they would ring my grandchild within ten days for an appointment. We discovered that my grandchild should have actually had another appointment but they weren’t in the system. Had not had an appointment since late last year. My grandchild has been incredibly busy with appointments and an operation for their premmie baby.

The ED doctor told us if you have heard nothing in the ten days go to a GP and they can ring Neurology as my grandchild’s meds will need adjusting again.

My grandchild went to see a GP who seemingly refused to ring and was told ring themselves which they did repeatedly and left a voice mail still nothing. In desperation I rang the customer liaison officer who got on to it and immediately my grandchild was sent a text giving them an appointment phone appointment. That will be a total of 18 days since referral for a category one Referral and only a phone appoinment. My grandchild lives where phone reception is sometimes less than desirable. My point is why is a catagory one referral not been actioned in the recommended 10 days. My grandchild had three over five minute seizures was hospitalized with good care. They are suffering memory loss so is having a very hard time and now has to wait til the end of the week their meds run out next week. I am really shocked they haven’t had the follow up they should have had. My grandchild has been quite unwell and struggling