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"Orthopaedic follow-up"

About: Perth Children's Hospital / Orthopaedics - Outpatient Clinic C

(as a parent/guardian),

Hi,

I am sorry to say the the follow-up telehealth service by PCH Orthopaedic Clinic for my child has been unsatisfactory, with our persistence being the only way it seems to receive any information.  We were prepared for the first Telehealth appointment at the scheduled time, but there was no call.  When I called the 1300 number, I was told that the appointment was 'attended' - which obviously wasn't.  I was told that PCH outpatient was closed (at that time).  I left a message and was told that they would give me a call back.  There was no response.  I send a message to CAHSFeedback, who called me back.  They were very good and said that the clinic would call back.  No response.  Once I finally spoke to the Clinic I was told that the appointment times are just an indication and that I should answer all "no number" calls.   Families do work also and I feel it is impossible to answer every 'no number' call at any time.

A second follow up appointment was scheduled.  I waited for the call for over 1 hour after the appointment time, without any indication that the appointment was delayed - (I would have thought that PCH administration could have sent a message).  When I called the 1300 number I was told that they were busy and would call.  I finally received a call 2 hours later, but told that the X-Ray wasn't uploaded so the doctor couldn't make any comment.  The doctor then asked me to follow up with the X-Ray (we live remotely) to organise the uploading of the x-ray.  The doctor said that they would reschedule the appointment, but no appointment time or date was confirmed. I was a bit surprised as I would have thought that PCH could ask the other hospital for the details - should this not be part of usual patient care?  I contacted the X-ray department and they confirmed that the X-ray was uploaded.   After 2 weeks, I contacted PCH (via email) asking about the follow up with no response.  I copied by email to a local doctor, who was able to follow up on my behalf and I received the required information.  

To my surprise, I received an letter say that as PCH was unable to contact me or see the APEX x-rays, stating that "I will send a copy of this letter to your GP who may be able to coordinate final x-rays and review" .  

My child and I have attended every appointment as scheduled, followed up as required and had all x-rays completed as required.  To be told by a Consultant that we hadn't is absolutely incorrect.  We live in remote WA and I think that we deserve better health service that what we have experienced.  I am able to navigate the health system, but I am very concerned for individuals and families who may not understand the health system and who to contact.  

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Responses

Response from Child and Adolescent Health Service - WA 14 months ago
We have made a change
Submitted on 20/02/2023 at 3:22 PM
Published on Care Opinion on 22/02/2023 at 9:58 AM


Dear Lionrz35

Thank you for sharing your story on Care Opinion regarding the coordination of your child’s telehealth outpatient appointments. I am very sorry that you have experienced these difficulties and living remotely, I can understand how frustrating this has been for you.

PCH has instituted several improvements related to feedback from our rural and remote consumers, specifically targeted at assisting families who live remotely to coordinate appointments. This service enhancement is still in its early phase and we are optimistic it will have a positive impact going forward. Additionally, PCH has increased education and support for clinicians on how to better manage virtual clinics, and appointment times in a telehealth environment. Thank you, ongoing constructive suggestions about telehealth services, communication and outpatient appointments will ultimately lead to a better health system overall, and we will certainly include your specific Care Opinion story to shape service improvements.

Please be assured that your concerns are being investigated to determine what went wrong and consider how we can advance this aspect of our service. If you would like further information on the investigation, I encourage you to contact the Consumer Engagement Service by email at CAHSFeedback@health.wa.gov.au or by phone on 6456 0032.

Yours sincerely

Nurse Co-Director, Surgical Directorate
Child and Adolescent Health Service
Perth Children's Hospital

Update posted by lionrz35 (a parent/guardian)

I am surprised that even our previous disappointing experience with PCH Orthopaedics telehealth and being subsequently promised that system changes will occur by the Nursing Co-Director, Surgical Directorate, CAHS, PCH three months ago, an unfortunate accident to my child (broken radius) has resulted in a similar experience. I have been told that I should report my experience through Care Opinion by a number of employees, which I feel illustrates that PCH has a systemic issue with telehealth and the support of remote clients. While living remotely is our decision, I believe that WA Health and PCH in this instance, has a responsibility to provide adequate and coordinated services across the state.

In our most recent experience, after a review by PCH Telehealth Orthopaedic Doctor, the information about recasting was not conveyed to the outpatient nurse or Department of Emergency Medicine resulting is a 4-5 hour wait, only to be told by DEM staff that they are very sorry, but they (the local rural health campus staff) where unable to contact the appropriate PCH staff and we just had to wait. I am surprised that no clinical notes appear to have been written that could have been conveyed to our local health campus. Waiting is not the issue and I understand emergencies do occur, but I feel the lack of communication is a system issue and should not affect the patient journey. When the local Physiotherapist and Doctor finally received the instructions from PCH, they apologised for the wait and advised that it may be better to return on a Fracture Clinic Day to prevent delays.

Recently, I was contacted by PCH Telehealth to be advised of my child's next appointment (which clashed with their exams) but I advised the staff what I was told by the local health campus’s staff. I then received a text clearly outlining the appointing on a certain time and date. About 15 minutes before the appointment time (while in the car making my way to the scheduled appointment) on the appointment day I received a call from PCH telling me that my child’s appointed has changed. When I questioned why, the operator said that they couldn't see the original booking but could see an appointment on the following day but that is now rescheduled to the day after. When I asked why, I received little information and felt I was treated as if I was the person in the wrong.

When I attended the local health campus’s outpatients, then couldn't see the previous cancelled (by PCH Telehealth) appointments. The staff where (as usually very helpful, but did say that they can only see limited information from PCH. While I still have not received an SMS notification from PCH, I now have the revised details and will attend the appointment again. It appears that PCH is happy that their telehealth clients seemingly waste time navigating the health system. I commonly receive letters in the mail days after the appointment time (due to delays in mail between Perth and where I live). I wonder why PCH and WA Health are unable to use the numerous modern communication channels to confirm appointments. In my previous issue, I was assured of change and action, including incorrect documentation that was to be redacted by the Orthopaedic Surgeon. This has not occurred and I am disappointed that WA Health and PCH appear to be happy to continue to provide substandard follow up service to the rural and remote WA community.

In my opinion, something needs to improve immediately to improve quality and client safety and reduce risks to the community of a major event. The Rural and Remote community deserves better and should be assured that their health is as important as those in larger centres. I feel that maybe WA Health should require all staff to work in rural and remote WA to experience the reality of poor systems and lack of communications. I am only pleased that our local hospital campus and staff provides excellent service.

Thanks

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