"Motor neurone disease"

I am the carer and partner of my spouse who was diagnosed with Cervical Dystonia some years ago along with depression. For over the past year they have been complaining of muscle weakness in their legs and arms and swallowing food. Late last year I wrote to Box Hill Hospital asking for help because my spouse keeps falling over and that something is wrong with my spouse. I felt I was treated with utmost disrespect by the Eastern Health Call Centre Team of whom it seemed laughed in my face like I was a joke so shocking infact I wrote in complaints but nothing was done at all and no one called me to follow up.

My spouse had a huge fall at home bruises all over so I wrote in again with evidence of the fall and noted that from this day forward I hold the hospital solely and wholly liable for their health. Within no time at all tests were booked and an appointment made with a neurologist the letter stated that my spouse must bring their carer which we thought was suspicious. On the day of the appointment with the neurologist we overheard them saying they needed a second person and that alot of emails had been sent in. The next minute two security guards sat near us of whom were being very loud shouting loudly when they spoke not knowing what they were doing I asked them to please stop shouting they responded rudely and immediately I believe they were teaching me a lesson for complaining, our appointment went well.

My spouse called Eastern health of whom accused me of being aggressive my spouse stated they would call IBAC for corruption and bullying as no one including myself has been threatening or aggressive. After many tests my spouse was diagnosed with Motor Neurone Disease and the neurologist stated an urgent referral was going to be sent to a MND clinic to get urgent help.

The following week no referral had been sent, Box Hill Hospital was unable to establish if a referral had been written. The following day still no referral had been found or sent however late in the day it was noted that a referral had been sent to a MND clinic of whom claim they had no such referral. So then my local MP calls stating that their attempts made to establish if a referral was sent was difficult and that they received a response from the MND clinic stating there will be no treatment till such time they receive a referral then Box Hill stated a referral was faxed then changed to a referral has been posted and to wait a few days for it to arrive yet what has happened to emails or faxing why is a letter being sent? I feel the referral has not been written at all or someone has lost it either way the matter is quite serious with my spouse suffering unable to walk and choking on food!

Overall, in my opinion, the service of the Public Health system is nothing short of appalling!