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"I felt the paediatrician didn't care"

About: Bunbury Hospital / Bunbury Paediatric Ward

(as a parent/guardian),

We presented to Bunbury ED with our young child. They had severe abdominal pain, we were seen fairly quickly, and pain relief was given, looking back now it probably could have been given a little quicker but really that is the least of our issues. We went off for an xray to rule anything urgent out. The xray showed that my child’s compaction in their bowels had gotten worse.

Once we had seen the Paediatrician Carson in the ED (who may I just say is amazing) we were transferred to the children's ward. Unfortunately, this is where it went downhill.

We saw a clinician, who advised we were going to start a decompaction on the ward but they also advised we needed a surgical consult. - they then advised we can't transfer to another hospital even though they would like this to happen, but they will refer us.. this concerned us and we asked many times if we should just take our child to the other hospital ourselves. I suppose when your child is in this much pain and needs something like Nasal fentanyl to get it under control you want to get to the bottom of their pain. Now also factor in this constipation has been an ongoing issue for around two years, not a huge amount of investigation has been done other than a few months ago when we were instructed by gp to attend the emergency dept after having an xray that showed severe impaction. Fast forward to now we are in the exact same position except my son has reduced fluid and food intake progressively over the months.

After we were advised the other hospital ‘would likely send us home' numerous times - which did seem insane to us, we decided to stay on the ward.

My child had very limited fluid intake while on the ward however they did eat everything and everything it was quite bizarre given my child had not eaten the few days before taking them into the hospital.

We finally started the decompaction which was one large scoop of osmolax - I did advise on numerous occasions that their usual dose is 2-3 large scoops this was ignored. They decided to do a fleet enema? To try and unclog from the bottom, over the next couple of days - both times this was a success and removing a clump of poo.

The following morning came around keeping in mind our child was still limiting their fluid intake I asked if their osmolax could be given with their brekky juice so it's in their belly doing something from morning not lunch time - as the dose from the day before was given somewhere around lunch time.

I was advised that it wasn't written up, we need to wait for the dr to attend the ward, write it up then it could be given, - what a mess around🤦‍♂️ all it seemed this did was delay everything moving. That day the second fleet was given which my child did another poo with. I raised my concern about the dose of osmolax and the fact they had not done a poo from it. The only time my child has poo'd was after the fleet. I'll add Jo, the nurse she was great she listened to my concerns the entire time! Along with another nurse who's name I can't recall; however she was super tall! And lovely.

This brings us to the following day, my child refused their breakfast juice but ate half a bowl of rice bubbles with some yoghurt. We're now at 12 hours since their last fluid intake

Mid-morning a clinician walked in and I recall said Go home, you don't need to be here you can manage at home. I was sitting on a chair, and they said hop onto your parent, when I suggested my child hop onto the bed I recall the clinician said no my child can sit on me, before I could explain I've recently had surgery and they can't just sit on me the clinician had walked over and was basically pushing my child onto my lap.

The clinician had a quick feel and repeated themselves, for us to go home.

Now this came as a complete shock, I tried to explain where we lived, was a very remote town with no hospital services, the clinician cut me off and wouldn't let me talk. It seemed they didn't want to hear about how my child hadn't drunk anything in the last 12 hours. They didn't want to know about my child’s behavioural issues, this clinician advised not to try and toilet train my child - which the two Paeds had suggested. They didn't want to hear anything I had to say. Then they walked out. I was in utter disbelief.

Who on earth walks in and is seemingly so rude, doesn't listen to a parent or a child.

I got teary, I was so concerned. I reached out to a nurse and said I'm concerned,

The nurse advised they would try and talk to the clinician, they came back and said the clinician said to go home and shrugged their shoulders. Upon leaving the ward I had more then one nurse suggest we attend a different hospital - one person even said not to leave this is how kids die.

I feel the clinician failed us and our child and the medical system.

I'm disgusted with the way we were treated.

Not once did I feel any paed on the ward take into consideration our child’s whole picture - their Impaction, their behavioural concerns our location of where we live.

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Responses

Response from Karen Horsley, Co-Director Stream B, Bunbury Hospital, WACHS - South West 11 months ago
Karen Horsley
Co-Director Stream B, Bunbury Hospital,
WACHS - South West

Stream B includes: Surgical, Maternity, Paeds, Theatre, DPU, Waitlist and HSSU

Submitted on 29/05/2023 at 3:47 PM
Published on Care Opinion at 3:59 PM


picture of Karen Horsley

Dear venuscq78

I sincerely apologise that your experience on the Paediatric Ward at Bunbury hospital left you feeling unheard and unsupported in your child’s care.

We know that in conjunction with providing clinically appropriate care, listening and being compassionate are key to building positive relationships and trust with our patients and their families, as well as being related to better health outcomes for our patients.

It is essential that you and your child receive the support you need and a treatment plan that works for you both. In this regard, the Paediatric team is very happy to discuss options with you and support you to speak with a separate senior Paediatrician for ongoing advice and treatment. I understand you have already contacted our Consumer Feedback team and I would like to assure you that I will be following up the concerns you have raised with them.

I’m also concerned that the nursing staff didn’t feel that they could do more to advocate for you and your child. As a result of this, I have reminded the staff that they can escalate their concerns to the Unit Manager or to a member of the Executive team if, at any time, they are concerned.

I would also like to take this opportunity to let you know that we have a process in place for patients and their families and carers to escalate any concerns they might have about the healthcare they are receiving. The Aishwarya’s Call and Response Early (CARE) call process enables people to request urgent assistance when they are concerned about their health and feel that their healthcare team has not fully recognised their changing health condition. When a CARE Call is made, a senior staff member listens to the concerns of the person making the CARE Call and makes a full assessment of the patient’s situation. The senior staff member then liaises with the treating medical team and other health care providers as required. The Aishwarya’s CARE call phone number is 1800 744 059 and all calls are very welcome. If you would like further information about Aishwarya’s CARE Call, please visit the WACHS Website at: WA Country Health Service - Aishwarya’s CARE Call

Thank you again for taking the time to share your story with us. I do hope that your child is recovering well.

Yours sincerely

Karen Horsley

Service Co-Director

Bunbury Hospital

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Response from Karen Horsley, Co-Director Stream B, Bunbury Hospital, WACHS - South West 10 months ago
Karen Horsley
Co-Director Stream B, Bunbury Hospital,
WACHS - South West

Stream B includes: Surgical, Maternity, Paeds, Theatre, DPU, Waitlist and HSSU

Submitted on 14/06/2023 at 1:39 PM
Published on Care Opinion at 2:13 PM


picture of Karen Horsley

Dear venuscq78

Thank you for reaching out to us and speaking to me directly on a number of occasions. I appreciated your feedback and being able to directly discuss the issues you have raised.

I was pleased to hear that you have a solution that is currently working for your son and that you were able to get an early appointment with a paediatric gastroenterologist.

Your concerns regarding the paediatrician who was looking after your son during his recent stay have been discussed with that person and also with the Head of Department. The staff member has reflected on their communication style and especially on listening to their patients and family members concerns. Again, I would like to apologise on their behalf for not considering your family needs and looking at the whole holistic picture.

We have also discussed with nursing staff the need to escalate when advocating for their patients rather than just accepting status quo. As discussed with you, we do have the Aishwarya care call system that you can use if you feel you are not being heard and have concerns about your son's care.

Given your sons complex care needs, should he require another admission to the hospital I am more than happy to meet with you in person.

Thank you again for taking the time to share your story with us. Your feedback helps us to improve the care we provide to all patients. I do hope your son is now feeling better and life is returning to normal.

Sincerely

Karen Horsley.

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