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"Complete molar pregnancy"

About: Rockingham General Hospital / Gynaecology

(as the patient),

Around a year ago, I discovered I was 4 weeks pregnant. I had mixed emotions as I had been struggling with anxiety since having my child 15 months prior but at least this explained why I had been feeling unwell. Weeks pass and I was feeling like I was slowly being poisoned. I couldn’t eat, drink, sleep, look at bright colours or walk upright without vomiting. My weight became very low and my anxiety increased as I thought I was malnourishing my baby, not to mention trying to take care of the baby I already had. As I had never experienced morning sickness before, I believed this was normal until I started bleeding and cramping. I moved up my dating scan and the sonographer concluded that I was having a miscarriage.

The following week, I was waiting to pass the pregnancy to no avail. My tests showed that my HCG levels were rising and I was to have another dating scan as it was suspected that I was carrying twins and I had miscarried one and another remained. I still had all the symptoms so to me it made sense. At the second scan, the sonographer was silent and said that I needed to speak to my GP immediately. My GP had yet to receive the scan results but as my latest HCG test still continued to rise, they said I needed to go to the ER urgently. So without knowing why, I went to Rockingham Hospital.

7 hours later, I was finally seen. They ran their tests and another 4 hours later, they told me I was likely experiencing a type of Gestational Trophoblastic Disease known as a molar pregnancy and that I would be scheduled for a D&C in a couple days but I needed to return tomorrow for another ultrasound. I was elated to know that this would be over in a couple days. I return the next day (my partner carrying me to the car as I was unable to walk properly) only to be told that a D&C cannot be performed on a weekend so I would be booked in on a Monday. However it was officially changed to a Tuesday as the Monday was apparently full. I sign all the paperwork and tell myself it will be over soon.

The Monday afternoon arrives and I haven’t received the call to state the time my procedure is booked in for. I call them only to be told that my file can’t be located and there’s no record of my D&C being booked. I just cried. They suggested I call in the morning in hopes my file will be located by then. So that’s what I did, but not only was it not found, I recall the staff member on the phone scoffs and asks who told me that as if I made it up. At my whits end, I ask them to book my procedure immediately and they managed to squeeze me that morning. Little did I know that after fasting all day, I'd be waiting in the ward for 7 hours only for them to tell me my procedure has been push to the following afternoon. I just burst into tears. I felt like I was being disregarded every step of the way. For my mental and physical health I couldn’t stand to have this postponed another 24hrs so instead I was booked in for first thing in the morning. Thankfully, they came through and the moment I woke up, I immediately felt better than I had in months. I felt clean, clear and like a literal weight had been lifted. It was then confirmed that I had a complete molar pregnancy.

The next couple months, my recovery was going well and my weekly blood tests were going down until my blood tests started to rise and plateau. I was sent for a CT scan and more ultrasounds and this is when the word Methotrexate was first mentioned. It wasn’t until later that I found out it was chemotherapy. I wish this was made transparent to me and not left for me to find out later.

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Responses

Response from Kath Smith, Executive Director, Rockingham Peel Group, South Metropolitan Health Service 9 months ago
Kath Smith
Executive Director, Rockingham Peel Group,
South Metropolitan Health Service
Submitted on 21/07/2023 at 5:25 PM
Published on Care Opinion on 24/07/2023 at 9:19 AM


picture of Kath Smith

Dear muscaen94,

I am very sorry to read that you felt disregarded when accessing care at our hospital, experiencing a Molar pregnancy can be a distressing time.

I apologise that we did not provide you with the timely care that you needed at such a difficult time. The comment made by our staff member on the telephone was disappointing. At Rockingham General Hospital we endeavour to treat our patients with care and respect in line with our values and I am truly sorry that this was not your experience. I have discussed your feedback with our Midwifery Manager, who will review the process for booking patients from the emergency department into theatre.

For the benefit of other women going through a molar pregnancy or sometimes an ectopic pregnancy, methotrexate is commonly used to treat these conditions. It is classed as a cytotoxic drug which is commonly used for a number of other conditions. I apologise that you did not receive this information and the chance to discuss this with our Outpatient Nurse Unit Manager.

Thank you for providing your feedback and I acknowledge that it must have been difficult to compose this feedback.

If you would like us to look into your case specifically, please do not hesitate to contact our Consumer Liaison Team at rgh.feedback@health.wa.gov.au.

Kind regards

Kath Smith

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