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"Molar pregnancy aftercare"

About: King Edward Memorial Hospital / Western Australian Trophoblastic Centre (WATC)

(as the patient),

I was transferred to King Edward Memorial Hospital and referred to Oncology from a different hospital after a complete molar pregnancy a few months prior. I was terrified but after my first appointment with Marion and Emma, I wish I had gone to KEMH from the start.

They made me feel so at ease and knowing that I was the first patient in the GTD centre I felt very taken care of. My following tests results over the next few weeks showed that even though my HCG levels resembled a rollercoaster yet on a downward trajectory, it was slower than what my team would’ve liked so I was given one more week to see if my levels reached <5 but if not, I was going to be booked in to receive methotrexate injections. I was gutted. This is the last thing I wanted and I just felt like this journey would never end. I explained my hesitation especially because I was so close to being within normal range and my team came up with additional tests to try before administering the injections which I was so grateful for.

As it turned out, these tests were not needed because miraculously the following week my HCG levels were in normal range for the first time. I finally felt like there might be an end to all this. Over the next couple weeks, my levels remained normal and I was able to graduate to 6 months of monthly blood tests which have all come back as normal too. Throughout this experience, I have been scared, overwhelmed and extremely anxious to say the least but I’m so thankful for my team at KEMH for their patience and for always being there to answer any and all of my questions. I believe if I had gone to them to begin with, with their specialised knowledge on GTD, then my whole traumatic experience could have been averted. I am forever in their debt.

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Responses

Response from Delaney Gibbons, Director, Safety Quality and Performance, Safety, Quality and Performance, Women and Newborn Health Service 9 months ago
Delaney Gibbons
Director, Safety Quality and Performance, Safety, Quality and Performance,
Women and Newborn Health Service
Submitted on 19/07/2023 at 4:48 PM
Published on Care Opinion at 5:07 PM


picture of Delaney Gibbons

Dear muscaen94

Thank you for reaching out to share your story with us. It is heart-warming to hear that the Western Australian Trophoblastic Centre (WATC) based here at King Edward Memorial Hospital was able to provide you with the support and care that you needed during what must have been a very long and traumatic experience for you. I am so glad that the staff involved helped you to feel at ease and partnered with you in making decisions about your ongoing treatment options.

Your very kind recognition has been passed on to the gynae-oncology team, and I’m sure they will be very grateful to receive this feedback and appreciation of the care they provided.

I’m so pleased to hear that your monthly blood tests have all come back as normal, and I wish you all the very best for the future.

Delaney

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