"Non functioning pelvic drain"

I attended FSH a couple of months ago, to have my regular Nephrostomy change plus a change of the Pelvic drain as it had stopped draining.

I spent 5 days in hospital on IV ABS,  as site was badly infected. Over that time drain was flushed and aspirated twice daily, trying to move a thick sludge that was settled in the base of my pelvis. 

After this time, I was sent home with oral ABS and instructions to keep up with the flushing and aspiration, even though there was no drainage coming from the tube. Six weeks later, I was back to FSH for next scheduled Nephrostomy change. Pelvic drain ,still not working, infection obvious at site. All staff I spoke to agreed it needed to be seen. Nope, once again sent home with infection, it does not clear up with oral ABS. The site is extremely sore and the fluid that is supposed to drain through the tube is now leaking from the tract. It burns my skin and smells. Was told to get my GP to refer me back for treatment. They did this over two weeks ago and also prescribed more ABS which they said will hopefully keep it under control til something was organised to fix it.

Fast forward another two weeks, back to GP and we both had the same question for each other, "have you heard anything from the hospital". Both answers were no.

My GP then said, I will write to them again and see if I can get anything moving. One week further on, still no phone call, even to ask me exactly what is, or in this case, isn't happening.

I have been suffering through this for over 2 months now. I have my next Nephrostomy scheduled for later this month. I am not holding my breath that two departments could actually communicate, as in my opinion, that is definitely something that is non existent. 

My mental health has been in a spiral since this all started, sadly, for my sake, I don't know how much longer I can stand being cooped up because I smell too much to go anywhere. It's embarrassing,  humiliating, depressing and downright dangerous as far as I am concerned. I am really struggling the longer this goes on. I am almost at the point where I will just give up with all I am doing to fight this. Let it take over and finish me quickly.

They have already told me they can't do anything to clear up the underlying problem, I just didn't realise that seemingly meant if something went wrong, they wouldn't fix it. Maybe if I go back to the ED I might get something done. I try so hard to stay out of EDS as they are busy enough. I feel I guess I will just have to wait til I get deathly ill.  Maybe then a tiny bit of interest might be shown.

Colo-Rectal Department.