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"Not caring about my care"

About: Fiona Stanley Hospital / Chemotherapy Unit, Cancer Centre, Cancer Outpatients Clinic, Bone Marrow Transplant, Oncology, Radiation Oncology & Ward 7C

(as the patient),

This is my experience of the standard of care given to me as a stage 4 cancer patient at FSH.

This last 12 months alone have been one different registrar after another, seeing my actual Oncologist once in 8 months. Knowing that they are very busy doctors, I feel does not excuse their treatment for a frightened stage 4 cancer patient.

I have had a multitude of problems the last 2 years and have had to source many different caregivers for pain management etc. none of which were offered at FSH. A new growth found in early this year, saw me sourcing a private clinic to get seen too. Wanting to discuss further with my Oncologist my impending operation and a recent Pet Scan that I had had, I was told my appointment had been cancelled.

When trying to speak to a cancer nurse I recall I was told that someone more in need then myself was given that appointment, (which by the way is fine, I would be the first to forfeit my appointment for an emergency), but they proceeded to tell me I was on 6 monthly reviews, (I have only ever been on 3 Monthly reviews).

Over my time with FSH I have had registrars tell me I have 2 weeks to live, how lucky I am to have this particular cancer and letters that are written by different registrars can't even get dates right of when I was Diagnosed stage 4. Also, appointments made to see Oncologists, sorry registrars, before Pet Scans are even done, this is an ongoing issue.

I am however grateful for the treatment of my cancer last year that has helped. But to sum up my several years with FSH Oncology Department, I really don't feel anyone cares about my care.

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Responses

Response from Neil Doverty, Executive Director Fiona Stanley and Fremantle Hospitals Group, South Metropolitan Health Service 5 months ago
Neil Doverty
Executive Director Fiona Stanley and Fremantle Hospitals Group,
South Metropolitan Health Service
Submitted on 6/11/2023 at 7:25 PM
Published on Care Opinion on 7/11/2023 at 11:05 AM


picture of Neil Doverty

Dear The Care Factor,

I am very sorry to read of your experience navigating appointments and follow up care under our Oncology team, this certainly does not meet the expectations of the service we want to provide.

Please be assured we do care about your care. As care opinion is an anonymous platform, I would ask that you make contact with our Patient and Family liaison service on (08) 6152 4013 during business hours or via email FSHFeedback@health.wa.gov.au to allow us to investigate further and ensure your appointment schedule is correct with appropriate support in place.

Kind regards.

Neil Doverty

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Update posted by The Care Factor (the patient)

I have been in contact with your Liaison Service and your Social worker, to be referred back to your Cancer Centre. It feels like a merry-go-round that has no one taking responsibility. It’s just so disappointing.

Response from Neil Doverty, Executive Director Fiona Stanley and Fremantle Hospitals Group, South Metropolitan Health Service 5 months ago
Neil Doverty
Executive Director Fiona Stanley and Fremantle Hospitals Group,
South Metropolitan Health Service
Submitted on 8/11/2023 at 6:33 PM
Published on Care Opinion on 9/11/2023 at 9:53 AM


picture of Neil Doverty

Dear The Care Factor,

I would encourage you again to contact Patient and Family Liaison (6152 4013) and ask to speak to the Patient and Family Liaison Manager – Angela. I’ve discussed your recent update with Angela and we’re unable to match any contacts received since my original reply, to anyone that matches your experience.

Angela is expecting your call – please get in touch so that we can better understand your experience navigating appointments and follow-up care.

Kind regards,

Neil Doverty.

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