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"No help for psychosis"

About: Brisbane

(as a service user),

I have schizophrenia and often get episodes of psychosis where I lose contact with reality and don't understand what is happening, or believe really awful and terrifying things are happening. I hallucinate and believe what I hear and see is accurate when it's truly not. The only preventative treatment available to me is antipsychotics which block my dopamine (feel good chemical), make me sleep constantly, gain heaps of weight unless I starve myself, have uncontrollable body movements, lose interest in everything, shrink my brain, and a whole heap of other side effects. They also reduce my life expectancy by about 30 years and greatly increase my risk of early dementia. Antipsychotics reduce my quality of life to the point where I wonder whether a life on them is even worth living. Because of this, I prefer not to take them. I have never been a risk to anyone but myself, and I understand my decision fully, yet my psychiatrist claims I don't have the right to decide. Due to this opinion, I am forced to take these drugs and my life is ruined.

In addition, these antipsychotics are not even very effective, I still get psychosis despite taking the maximum dose. There really needs to be better medications for schizophrenia, ones that work without taking away the meaning of life. And there needs to be oversight in psychiatry, as currently I feel it is completely lacking. Based on my experience, I feel practitioners shouldn't be able to make claims about people without justification, and they should be held accountable if they allow their personal biases to influence their work. False information should be able to be deleted from a person's medical record, and documents created by seemingly biased practitioners should also be able to be removed. People with psychosis who don't respond well to antipsychotics shouldn't be blamed for this, nor should their psychosis be blamed on their behaviour or any other apparent invented characteristic. In my opinion, psychiatrists should have the humility to admit their limitations and the limitations of their treatments, instead of blaming their patients for these. And hospitals shouldn't turn people away just because their illness is chronic.

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