"Timely care, patient records and discharge planning"

I have been diagnosed with oesophageal varices and very low platelets (24,000).

I feel like I am a walking time-bomb. I am in my 50s, and frightened.

Another hospital transported me to Tweed Heads ER after conducting many blood tests. They said that it was important that I go to Tweed Heads hospital because then I would be able to consult a haematologist and a gastroenterologist.

I was advised not to eat after midnight in preparation for an endoscopy which would establish the severity of the varices.

At 3 pm the following day, a gastroenterologist visited me and advised that no in-patient procedures were done there and that they would contact me in the next few weeks to arrange outpatient treatment. 

The next day, a haematologist visited me and arranged more blood tests and a follow-up for treatment for my low platelets.

Recently I rang the hospital as there were no notes about the specialists. I was advised to go back to my GP. 

I wonder how often this happens? I am at high risk for variceal bleeding, I am covered in black bruises, and I cannot see how I would reach a hospital in time to address the problem.

This situation is absolutely frightening.