Good morning
I would like to share my frustration and disappointment on the broken system, incorrect reports, no communication, and lack of resources unless you have money.
My now 18 yr child attended the pain management clinic, during this time every 6mths they would be seen by a pain Doctor (all different on all occasions except once), they then write a report which goes to the GP. These reports are extremely important as they reflect one’s medical conditions and all the steps taken to assist in recovery if possible.
When these reports are continuously incorrect on many levels it creates a huge problem as they cannot be used for evidence, this sadly has happened every time. In my experience, when you try and contact to have them rectified, it is near impossible. The latest report was done from a clinical nurse via a phone appointment which in turn has created many incorrections in the report. I was left with no choice but to lodge a complaint, because as like every other occasion calling the pain clinic has proved ineffective, the phone is never answered, my message is never followed up. I have now just been informed it will take up to 30 days, this does not help my child's situation.
My child also received help from the YCATT team for their deteriorating mental health, due to their long term Chronic pain and Fatigue, this again is only short term then, in my experience, you're left on you’re own struggling again, it really is heartbreaking. My child was engaged with a lovely Psychologist and a challenging Psychiatrist whose opinion was it’s all in their head based on lack of reports and one test, which spiralled their mental state of mind even further down a deep hole.
The YCATT team suspected my child was on the ASD spectrum, but did not have the resources to diagnose. I took it upon myself to find a Psychologist for my child to be assessed, which was a long exhausting process, so they are now provisional diagnosed with ASD level 2 and PTSD. The Psychiatrist at YCATT said they would have a look at the report before they wrote up their own report to come to a conclusion whether or not they agreed for it to be signed off. This has proven to be yet another huge obstacle, as that person is now in another department and I have again had no contact.
We are constantly hitting road blocks. I just want my child to get the support they need, but without the correct evidence and diagnosis they have nothing.
Can someone please help us, any assistance would be greatly appreciated.
"Broken system, short term help, incorrect reports, lack of or no communication."
About: Fiona Stanley Hospital / Acute Pain Service, Anaesthesia and Pain Management Department Fiona Stanley Hospital Acute Pain Service, Anaesthesia and Pain Management Department Murdoch 6150
Posted by earmarkbh35 (as ),
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Update posted by earmarkbh35 (a parent/guardian) 10 months ago
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