"Experience with a clinical trial"

Corneal Research Group – Clinical Trials Unit

I was diagnosed with Dry Eye Syndrome and did sign up for a clinical trial designed to develop new drops to help more patients like me.

I was not able to to attend the full research as my condition was too severe to test.

The doctors in Sydney Eye hospital were great to me, big thank you especially to Dr. Ngozi and Dr. Nancy.

But I am just so disappointed with the lead of the project (the clinician). I have visited their clinic prior the research, paid over $300 fee and I think they might have spent 5min with me. I believe that all the work was done by their team, not the clinician.

After the research I was offered to get the serum eyedrops. The clinician was meant to sign paperwork for me, send me to blood donation and then send me updates on the drops. None of that ever happened.

I had to all that myself, got a signature of their reception staff and after long 8 months finally got the drops. I was beyond frustrated that they did not even call me when the drops were ready. I understand the clinician was notified on their private clinic email address from the Lifeblood clinic.

Luckily I am quite resourceful and got in touch with the hospital again just to check, to learn the drops are ready for me to pick up for few weeks already! Can you imagine how much hope I got to have a solution for my issues and then this happened. I understand if they are too busy but why do you seemingly take on new patients and promise them to treat them and then seemingly not do anything, in my opinion just get their money.

Please, do not give fake hope to people who really struggle and need professional help.