I feel there is a lack of communication between ambulance staff, doctors and nurses as well as Diabetic Educators and parents.
I feel there is no compassion.
In my opinion the blame game behaviour towards parents is appalling.
I feel there is a lack of knowledge about diabetes and nurses admit lack of knowledge.
Diabetes has a mind of its own; it is not a text book disease. It makes our stress even more stressful including my child's experience.
As my child said, they know their diabetes best, then their parents.
Nurses dictate pushing needles into legs.
There is a difference in advice and even contradicting advice.
The doctor told the nurse to administer high dose insulin just after leaving the room and telling me a much lower dose that we worked out together.
2 nurses came to inject when my child usually does it himself.
I begged them to check with the doctor as they had just left and would still be on the ward.
I feel the communication is appalling.
They came back and apologised. Most don’t apologise.
Our experiences have made my child scared of going to hospital; my child begs not to go.
I needed their support but they blame me and dictate about only using technology which my autistic child tried but doesn’t want as my child is sensory.
They often don’t listen and I don’t believe any notes are written about my child.
Very dissatisfied.
"My child's type one diabetes emergencies"
About: Perth Children's Hospital Perth Children's Hospital Nedlands 6009
Posted by leopardrb76 (as ),
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