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"My child's Scoliosis care"

About: Broome Health Campus Karratha Health Campus / Surgical Services

(as a parent/guardian),

My child has been diagnosed with Scoliosis in 2017 at Karratha Outpatients Clinic where they had an initial and follow-up appointment. 

We then moved to Broome and had a follow-up appointment at the Broome Health Campus. 

At the time of these appointments, neither the Broome or  Karratha Health Campuses had a child's spinal specialist on their books. I believe that if we had been referred to a children Scoliosis specialist at the time, my child wouldn’t have been in the situation they are in today with 47deg Cobb angle in their upper spine and 25deg Cobb angle on their lower spine.

We have been residing in regional WA for over 12 years and we are grateful for having the opportunity to see specialists locally instead of flying to Perth. However, I wish the specialists coming to regional areas would understand the variety of needs the regional area has and come prepared with appropriate resources and knowledge to give the best medical advice. 

My child is now in the care of an Orthopaedic Specialist in Perth but because of their age and spine curvature, we might have to go down on the fusion spinal surgery path. I am hoping the person in charge will read this message and will take the appropriate decision.

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Responses

Response from Bec Smith, Regional Director, WACHS - Kimberley 4 years ago
Bec Smith
Regional Director,
WACHS - Kimberley
Submitted on 24/02/2020 at 8:41 PM
Published on Care Opinion on 25/02/2020 at 9:55 AM


picture of Bec Smith

Dear festivityse74,

Thank you for sharing your child’s experience in Karratha and Broome with us. I am sorry for the difficulty you had accessing care from a children’s Scoliosis specialist close to home.

Both myself and Margi Faulkner, who is the Pilbara Regional Director, would like the opportunity to know more about the care provided to your child. We really would like to meet with you and to hear from you how we can improve the delivery of services closer to home. We would also like to speak with you about what further support you might need from us going forward.

If you are comfortable to call me on 9195 2450 or Margi on 9174 1650.

You can also email me at bec.smith@health.wa.gov.au if you prefer.

Once again, my apologies for your child’s experience and my thanks for your feedback. I do hope we talk soon as I am keen to make sure we can better meet the needs of our patients.

Kind regards,

Bec Smith

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