"Disappointed and heartbroken by the lack of care"

I am applying for disability support pension which required a letter from my specialist at Box Hill Hospital.

I have spent over a year contacting the Box Hill hospital, the specialist department and also my doctor at all of my appointments before it got sent through.

I spelled out the information that I needed, but I felt very little of the necessary information was addressed. In my opinion, the doctor's letter is deeply misleading and misses central information.

Misleadingly, the only relationship the doctor described they have to me is that they spoke to me on a telehealth appointment once. Not once is it mentioned that I've been seeing them for three years after being transferred to them by another specialist who saw me for two years before that!

I specifically requested that the letter include who diagnosed me and when. The clinic has been sent information and when I was diagnosed and who diagnosed me! None of this is mentioned.

I asked for evidence of tests to confirm my condition. Only a tilt table test is able to pick up and diagnose my condition. My doctor only describes a totally unrelated test. They say that in this test I showed normal functioning, which is unsurprising because I believe my condition would never be visible in that test. This information is completely misleading to anyone assessing my claim.

The doctor says that they have not seen the results from the official diagnostic test even though it's been sent to the clinic.

I am deeply disappointed, both by how long I have been working to arrange this and by what I feel is a lack of care taken in the letter.

I've had a number of issues with this specialist. Every appointment in the last three years involved:

- waiting an hour or more after my scheduled time to see the specialist

- being asked about how many times I have passed out (no other questions or comments)

- having a script written

My previous specialist would answer my questions, explain what's going on with my condition, explain how my medications work, explain my options or if there aren't any options, explain why. They would listen to my concerns and ask me about them.

I feel it's a low bar and yet, I'm still being failed.