My parent was an inpatient in a private rural aged care facility and was in their final days of struggle with dementia. It seemed to me that I was encouraged by an RN in the facility to sign a document referring my parent to the regional WACHS Palliative Care service in order to receive confirmation that my parent was getting the best palliative care possible, advice with anything else that we could be doing and emotional support for my family.
Our one encounter with this PC team we felt was so distressing that we regretted signing that form, and wanted nothing to do with them again. Unfortunately, as I understand it our rights were taken from us and I believe we were no longer allowed to have any further say in my parent's care.
We were completely disgusted by the interactions with the Palliative Care team. I felt that our concerns, questions and wishes were completely disregarded, even though I thought I had Legal Guardianship of my parent. It caused us an enormous amount of grief in an already distressing situation. After a few months it still causes me great pain to remember it.
"Feedback on experience"
About: Wheatbelt Regional Palliative Care Wheatbelt Regional Palliative Care Northam 6401
Posted by guideen38 (as ),
Do you have a similar story to tell?
Tell your story & make a difference ››
Responses
See more responses from Russell Colyer-Cockburn