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"A referral to urology service"

About: St John of God Midland Hospital / Allied Health and Outpatient Department

(as the patient),

A 4.5 cm tumour was found on my right kidney late last year on an ultrasound and then on a CT scan. I was referred to urology at Midland.

I received a letter saying that I was on a waitlist and it may take some time, dated around a month later. At the time I was not worried about this as due to a miscommunication with my GP, I thought the tumour was less than a cm in size.

However, after another follow up scan, I discovered the other week the actual size, and found out from the public health guidelines on renal mass referral wait times, that a mass of 4cm or greater is classed as urgent, category one, and that as I understand it, I should have been seen within 30 days. I rang Midland hospital and found out that I am categorised at non-urgent. I have been ringing around, visiting doctors and speaking to people trying to have this changed. I thought this had been successful but around the time of writing this, I found out I am still classified as non-urgent. I am still on a waitlist and might not be seen till late this year if it can't be fixed. If this is cancer, I believe it could have spread by then and I might die because of this mistake.

I feel extremely scared, and like my voice, care, opinions and even my life are not considered as important. I am also confused and angry about why this has happened and how my referral got categorised this way and I feel that since my life may be in danger, I deserve to know what is going on.

I am currently trying to seek mental health help additional to the physical help I need as the stress and worry I feel have overwhelmed my normal coping abilities. This has left me unable to work, sleep, or carry on with my normal day-to-day responsibilities.

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Response from Janet Jones, Director of Nursing, Midwifery and Clinical Governance, St John of God - Midland 3 months ago
Janet Jones
Director of Nursing, Midwifery and Clinical Governance,
St John of God - Midland
Submitted on 21/01/2022 at 2:01 PM
Published on Care Opinion at 3:13 PM

Dear sigmard99,

Thank you for letting us know about your recent experience while waiting for a urology referral at St John of God Midland Public Hospital (SJGMPH).

I was disappointed to learn that there had been a delay in the progress of your referral and acknowledge the distress and concern this would have caused.

So that we can fully address your concerns and ensure that your referral is managed with the required urgency, please contact our Patient Experience Coordinator on 9462 4901.

Please be assured we will do all we can to assist you and I again apologise for the stress and worry you have experienced so far. I appreciate that you have taken the time to let us know about this important issue and we look forward to hearing from you and providing some assistance to resolve any ongoing delay.

Thank you once again and kind regards

Janet Jones

Director of Nursing, Midwifery and Clinical Governance

St John of God Midland Public and Private Hospitals"

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Update posted by sigmard99 (the patient)

Thank you. I really appreciate the quick response and the seriousness with which you all are taking this.

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