I received a phone call from PCH to say a bed is open for my child's appointment and that I can bring them in now.
Not so bad except for the fact that we live about four hours away (country patient) and cant just drop everything at a moments notice as we have another child that we would need to organise care for, generally that is my parents who live another three hours away and also work.
We also don't know what the appointment/procedures/tests that our child would be receiving as we haven't received our pediatrician reports, nor what is involved with these appointment/procedures/tests as we have had no contact from anyone to discuss.
We were told by our pediatrician, that we would receive a pre-admission letter at least four weeks before our child's appointments at PCH. This didn't happen. I also addressed this with the staff member who made the phone call recently as they told me that they cant schedule appointments at the moment because of PCH's bed situation at the moment. I then told them that as country patient we need weeks notice for appointments so we have time to organise ourselves.
We will not take our child for appointments/procedures/tests that we have had no consultation on. This phone call left us feeling angry, upset, confused, frustrated, unheard and misunderstood.
"Patient contact"
About: Perth Children's Hospital / Neuroscience and Neurology Perth Children's Hospital Neuroscience and Neurology Nedlands 6009
Posted by camelopardalisje75 (as ),
Do you have a similar story to tell?
Tell your story & make a difference
››
Responses
See more responses from Louise Keyes