"Missed surgery"

I've had the worst surgery experience:

False surgery, botched biopsy... demanded a second opinion at a new GP, requesting new oncologist and surgeon, after seemingly being refused treatment, believe I got ignored for months... told the surgery was done right.... surgery specimen showed no cancer in any tissues or lymph removed during lumpectomy... then, I understand, biopsy was done in the wrong spot with clips left behind as proof.  Surgery was done blind, no prior scans to surgery, no clip, no hook and wire, just blue dye for lymph nodes.

Then, results come back positive for cancer as I suspected, from recent biopsy that I set up myself with another facility and gp, so I didn't have to get seemingly denied by my oncologist again and delayed even further: they have a biopsy date for me soon, but I wanted scans sooner and they said 2 month wait was soonest they could do, so, I’ll go get them myself.

So, I've had a false surgery, a false biopsy, giving me false hope, and denied my own truth when I said they did the surgery wrong.

6 months of sitting and waiting for treatment or something of the tumour near my heart, no progress because they haven't found a treatment plan beyond potentially heart surgery?! (Which I am still waiting to hear back from the surgeons to get that tumour discussed.... who knows when that will be...)

I asked many questions so nothing got left unsaid, and I recall my surgeon stood up and, I felt, yelled at me to get out of their office if I didn’t want this treatment because they had over 1000 patients lined up for their procedures. Not to mention they got a different surgeon to deliver the message that the surgery came back with no cancer tissues removed at all. And my second opinion biopsy, after the first failed biopsy, showed that the surgery is in the wrong site of the breast, as the cancer, and the biopsy markers post-surgery were in the wrong site as well. I believe it’s no wonder they never found the cancer during surgery, they seemed to missed the surgery site! I feel it’s no wonder the biopsy came back no cancer, they seemingly missed the biopsy positioning.

How does one make these mistakes you ask? Well, I had no scans prior to surgery other than months prior, which I had chemo so there were changes. I said no to a marker clip installed prior to chemo because I knew the chemo would change the lesion anyways, and best to do the clip prior to surgery so we know it is in the remaining tumour epicentre. They didn’t install hook or wire, and didn’t do any scans prior to surgery, and they only used blue dye for my lymphs, which all came back clear, so to them, it seemed like the perfect job well done. But to me, immediately after surgery I knew this surgery was done in the wrong spot and they missed the cancer.

I have had another biopsy done months later, near where the other post-surgical biopsy markers are, but those first markers were in healthy tissues and not in the tumour. There is no way my tumour moved positions 3 times during my chemo and surgery journey and 6 months post-surgery. I went from a grade 3 to a grade 2 HER2+, it shrunk because of chemo, but now it is growing back. I was also denied my second last treatment because I didn’t have a vaccination, and so I couldn’t get my final chemo either because I refuse to be vaccinated.

My oncologist wouldn’t believe me when I said the surgery was false, they missed the cancer, and the biopsy must have been done wrong. I do not trust it, and I was right. An external radiology service picked it up right away and, as I understand it, saw both the surgery mistake, and the biopsy mistakes that royal perth did, to create false hope and delayed treatment plans.

I have had to switch hospitals entirely and get my new treatment plan expedited with a whole new surgeon and oncologist team with another hospital, but after going through everything I should have, I feel terribly let down, and even so far as almost physically mutilated beyond what was necessary as I now have to have more breast tissue removed, when it should have been done right the first time.

But to think they were gonna do radiation on me; while the cancer was still sitting there untouched?! I said no. You haven't got the cancer yet... It shrunk... that’s about the only progress... it was a grade 3. Now a grade 2. Only because of chemo! I understand nothing has changed, and no it wasn’t cut out, and I believe that surgeon is still responsible for my treatment of care to be sure they did their job correctly.

Doctor

Being listened to

Manager