"NDIS system"

My adult child had diabetes, charcot and they had no help from the NDIS. I feel they failed my child, my child a big person but I put them on a diet and they lost 2 stone and we were very happy. We went to a place where they show you tests for your heart and it was a small thing they said it might not pick up a lot of things, we should have got one done at the hospital. We were hoping to have an x ray on the bigger machine but there was a 2 month wait. The doctor rang us up and said there was nothing wrong with my child- what a load of rubbish- my adult child died and had an enlarged heart and also had clots in their lungs and heart. We thought everything was alright but my child fell one day they just fell on the floor. I did CPR on them for 40 minutes while waiting for the ambulance. I have PTSD and flash backs all the time so I have to go in and get counselling for that. When I read the report from the coroner said my child had an enlarged heart and had clots that come from their legs but they were treatable, something should have been done.

The whole system failed my adult child. I put them in hospital for 3 days and they were incontinent so they were laying in their own wee for 3 days. I took them out I thought they'd be better off at home. My child's toe had to be removed. With their charcot, my child was laying on their bed for 2 and a half years, the podiatrists did well to look after them but the NDIS was supposed to get my child an electric wheelchair. My child never even had a coordinator. All they wanted was a wheelchair, when we spoke to the NDIS they said 'hire one'. But my child was was a bigger person so they would had to have a bigger wheelchair.

I was so angry with the NDIS. My other relative had such a different experience with the NDIS I believe because they transitioned from state to federal whereas my adult child wasn’t on the state system before and just went from rehab to the NDIS and in my opinion, they failed them.