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"Autistic in ED"

About: Sir Charles Gairdner Hospital / Emergency Department

(as the patient),

I attended SCGH ED. It wasn’t my choice. My neighbour called the police after they yelled at me. The police forced me to attend because I was home alone and seemed upset. But I was upset because my neighbour yelled at me and called the police. I had to wait 14 hours in ED. It made me more and more upset to be there. I couldn’t speak and was crying and crying. I recall the nurses told me I was a waste of hospital resources and I should go somewhere else. I couldn’t go anywhere else. The police wouldn’t let me. Also, my medical file says I have autism but they told me I probably diagnosed myself off YouTube when I didn’t. I recall they told me it was stupid to be upset about noises and people. I know that but they upset me anyway. I don’t like police and I don’t like hospitals.

The doctor finally came but there was no bed in ED. I had to sit on the floor. I could hear the nurses seemingly snickering about me. I felt they were mad too because I couldn’t tell them my name. I showed them my wrist bracelet but they kept saying I had to speak. I couldn’t speak because of my autism. Everyone I saw was mean for no reason. Then they locked me inside the mental ward. I wanted to call my parent but they wouldn’t let me. I couldn’t leave they said. I tried to open the door but they yelled at me. I hated it there because they took my clothes and kept yelling at me and I was locked inside with other people I didn’t know. I was so scared. I feel the nurses I saw are bad but the doctors I saw are worse. They came the next day and again yelled at me because I couldn’t speak. I couldn’t open the water bottles and had to drink out of the bathroom. I couldn’t get any breakfast because they said I had to ask for it but I couldn’t. I just wanted to go home. They made me take medication when I didn’t want it. It made me sick and they said if I didn’t try harder they would give me ECT. I don’t want ECT.

My parent finally found me and told them to let me go. They wouldn’t let me go until my parent talked to the doctors. I believe I would be locked up forever and made to take medication and have ECT if they didn’t rescue me. But I feel the hospital and nurses and doctors shouldn’t have done that to me. I have autism not psychiatric problems. I didn’t do anything wrong but I felt they didn’t care.

It seemed the staff I saw hate autistic people and I believe they want them to never come to SCGH ever again. Well I will never go there ever again. Not even if I am hurt and in an ambulance. I would rather be dead on the pavement. I will never go near police or hospitals again. I hate them. I hate being autistic because in my experience, everything I saw thinks I am lying even though they are the ones who diagnosed me. I am never going there again. I would rather be dead. Never ask for help ever again.

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Responses

Response from Jodi Graham, Executive Director, Sir Charles Gairdner Osborne Park Health Care Group 3 months ago
Jodi Graham
Executive Director,
Sir Charles Gairdner Osborne Park Health Care Group
Submitted on 2/01/2024 at 2:47 PM
Published on Care Opinion at 2:47 PM


picture of Jodi Graham

Dear hawkdk83,

Thank you for taking the time to provide your feedback about your recent visit to the Emergency Department (ED) at Sir Charles Gairdner Hospital. I am so very sorry to hear that your experience was not a positive one. I am disappointed to hear that your experience left you feeling helpless and distressed and that you feel that you cannot ask for help again in the future.

Our ED team take every bit of feedback seriously, and they are looking to improve their services for Autism and Neurodiversity patients by implementing a new service called the Behaviour Emergency Response Team (known as BERT). The BERT team has several aims, including improving the experience for patients by enhancing access to different kinds of health practitioners, and better linking patients in with the National Disability Insurance Scheme (NDIS) where this is required. An additional aim is ensuring our staff have a good understanding of things to consider when working with people who are neurodiverse. I am hopeful that this will assist in improving the experience for all people coming to our services in the future.

Without knowing the specific details of your visit to the ED, I am unable to provide further information or advice. I would encourage you to contact the Consumer Liaison Service (phone: 6457 2867 or email CLS@health.wa.gov.au) to provide your personal details, which will allow our staff to investigate and provide a more personalised response for you.

Once again, thank you for sharing your experience of our ED service. It is important to us that we consistently try and improve the care we provide, and your feedback assists us with that process.

Warm regards

Jodi Graham

Executive Director, SCGOPHCG

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by hawkdk83 (the patient)

I believe you lie and your ED Team does not take feedback seriously. My parent already made a complaint and as I understand it, you personally told them I didn't matter and that nurses and doctors never do anything wrong.

In my opinion, BERT sounds like a security team meant to deal with difficult people not to help people like me.

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