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"My parent's health care after a severe stroke and my experience"

About: Bunbury Hospital / Sub-Acute Ward

(as a relative),

Recently, my parent suffered a severe stroke at home. Ambulance was called and my parent presented to ED. CT stroke protocol scan was requested and my parent was taken to Radiology accompanied by PCA, RN and myself. The PCA took a seat next the RN, whilst I stood at the window watching my parent enter the scanner. The PCA went on their mobile and started scrolling and I recall said to the RN did they see a celebrity died, wonder what of? they continued to chat about this subject, all the while I was watching my parent nervously getting scanned.

Other WACHS staff (nothing to do with my parent's care?) entered this tiny room continuing to chit chat about their day to the PCA & RN. Given this room is tiny and my parent's stroke condition I felt this was inconsiderate and showed no compassion towards me or my parent nor the poor technicians trying to do their job. Are mobile phones allowed for personal use whilst at work and should all these staff be present & chatting? - It should be noted my parent become very unwell whilst being scanned and possibly had a heart attack during this scan. They were rushed back to ED.

My parent spent 3 weeks on the SARU ward. I was with them every morning to assist them with rehab as they do not speak english very well. Limited English was noted on my parent’s Care Plan on the wall.

After 3 weeks a MDT meeting was called and I and my siblings requested to attend. This was the first meeting and I noticed they made my parent attend also. There was no interpreter provided for them and the social worker began to apologise as we walked them down the corridor to the Gym Room - I had no idea what this meeting would entail other than all staff in their care attend. Each health professional gave a detailed speech, most of it not positive and I would have preferred that my parent had not been present due to their limited english- which I believe all staff were fully aware of. It was difficult to listen too, even though my parent's condition was grave, it would have been preferable my parent not attend this first meeting. The meeting ended and I began to wheel my parent to their room and their understanding of the meeting was in their question to me - " So I can go home now?". This broke my heart as I had to say "no" to my parent.

Sadly I received a call from the hospital around midnight that same evening - a MET call had been made for my parent - please come asap. I and my sibling's came but my parent had already passed. We spent our time with them and then gathered their belongings and began to leave - but a nurse wanted a word with us. They advised that the Mortuary will be in touch with us. I was absolutely shocked and still in grief and just left with my sibling in disbelief. Whilst in the car driving home I received a phone call from this same nurse asking what would I like done with your parent's false teeth and their watch? I was grieving and in absolute disbelief I was being asked such a question. From memory I just said my parent’s teeth belong with them and someone will collect their watch the next day. From my experience I need to let you know that we are all consumers and I feel we all should be treated with respect and as I understand it, staff need to show compassion and seemingly uphold their WACHS role with integrity in all situations.

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Responses

Response from Ellen Kenevin, Acting Director Nursing and Midwifery , Bunbury Hospital, WA Country Health Service - South West 3 months ago
Ellen Kenevin
Acting Director Nursing and Midwifery , Bunbury Hospital,
WA Country Health Service - South West
Submitted on 9/01/2024 at 1:46 PM
Published on Care Opinion at 2:09 PM


Good morning blackbirdjy45,

Please accept my sincere condolences for the loss of your parent, I appreciate that this must be a difficult time for you and your siblings.

My name is Ellen Kenevin and I am the Acting Director of Nursing and Midwifery at Bunbury Hospital.

I am saddened to read your experience and would like to make contact with you so you can share your experience with me directly.

Please, when you are ready, you can contact me by email, ellen.kenevin@health.wa.gov.au or phone 0447793904, land line 97221422.

Kindest Regards,

Ellen

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Response from Ellen Kenevin, Acting Director Nursing and Midwifery , Bunbury Hospital, WA Country Health Service - South West 3 months ago
Ellen Kenevin
Acting Director Nursing and Midwifery , Bunbury Hospital,
WA Country Health Service - South West
Submitted on 23/01/2024 at 11:08 AM
Published on Care Opinion at 12:04 PM


Good morning blackbirdjy45,

My invitation to make contact is still valid.

Please, when you are ready, you can contact me by email, ellen.kenevin@health.wa.gov.au or phone 0447793904, land line 97221422. If you prefer, you can contact swfeedback@health.wa.gov.au or call our Coordinator of Patient Feedback on 97221521.

Whilst I cannot investigate your feedback in depth, without your details, I can share that out Acting Director of Allied Health has also reviewed your feedback and has the following to add:

Please also accept our condolences for the loss of your parent.

Thank you very much for providing your feedback on the experiences related to the meeting held with the multidisciplinary team. I acknowledge that sometimes the information covered in these meeting is not positive and can be challenging to hear. We do include the patient in these meetings so that they have an understanding of their condition and are involved in their discharge planning. This is supported by the Australia Charter of Healthcare Rights and the Stroke Foundations Living Clinical Guidelines for Stroke Management. There should however be an interpreter available so that they can understand the information presented. We apologise that this was not organised for the meeting with your parent and siblings. We have reminded all staff within Allied Health and of the process for accessing interpreters and that they should be used when required for the provision of health information to a patient and/or their family. We have updated the information available on our intranet and will ensure nursing and medical staff are also aware of the process to access an interpreter.

We also apologise that the purpose of the family meeting was not conveyed to you and have reminded staff of the importance of clearly communicating the purpose of a meeting when it is arranged. Resources to support family meetings will be reviewed and updated where indicated.

Thank you again for providing feedback, the information you have provided is valuable and will be used to improve the experience of all our patients and their families.

Warm Regards,

Ellen

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