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"Failure to place me on the surgery waitlist"

About: Fiona Stanley Hospital / Antenatal Clinic, Birth Suite, Maternal Fetal Assessment Unit, Obstetrics and Gynaecology Unit, Wards 3B, 3C, 3D, 3DO, Visiting Midwife Service

(as the patient),

This is in regards to Fiona Stanley Hospital. At our first appointment together I informed my new gyno that my previous gyno said they would place me on the waiting list for surgery a long time ago. My new gyno immediately checked with the surgery waitlist and a few minutes later we found out that I had never been placed. They have now gone ahead and placed me on the waiting list, category 3, 365 days maximum wait time. However, I feel that it is entirely unfair for the time I’ve been waiting not to count! There’s obviously been some mistake made here. I don’t know who’s to blame, or why, and I suppose it doesn’t really matter to me…in my opinion we’re all humans, we all make mistakes, as long as the mistake is rectified, well, no harm done. But the mistake hasn’t been rectified has it? Why should I wait extra time because it seems someone else stuffed up and forgot to place me on the wait list?

I was told I’d be placed on the list around 9 months ago, at my first appointment my previous gyno. Even if it took a month to get it all done, and that’s being generous, I understand I should have been on that list from at least 8 months ago. Therefore, following that, I have been waiting for my surgery for around seven months now. I feel those months should count. I feel I shouldn’t have to pay for hospital staff member’s clerical mistakes. I don’t care how it's rectified, but I want those seven months to count.

I'm struggling with a lot of issues: PTSD (including sensitivity to lights and sounds, the hospital is a nightmare for me!), Major Depressive Disorder, Anxiety, Hypertonicity from head to toe caused by the PTSD, Chronic Daily Migraines… and now gastritis is in the mix too, which limits the medication i can take for period pain. I have also had a recent increase in symptoms due to Slinda, which is a drug I can only stop after the surgery takes place. I need this surgery as fast as possible.

I know they all have tough jobs… In fact I’d argue that some of the most difficult jobs in the world can be found inside a hospital and some of the hardest working people in the world will also be found there. I am not asking for special treatment. I’m asking for you to treat me with the appropriate standards and respect that I think every patient should be treated with. I feel there is absolutely no reason why I shouldn’t have been placed on that waitlist last year after my first appointment with my previous gyno. I believe there has been no disagreement on whether or not I need surgery, that’s always been a clear yes from my previous gyno and from my end too. I feel there has obviously been some oversight or mistake and I am very grateful to my new gyno for bringing this mistake to light. I need that surgery…really badly. Please, make those seven months count.

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Responses

Response from Neil Doverty, Executive Director Fiona Stanley and Fremantle Hospitals Group, South Metropolitan Health Service 14 months ago
Neil Doverty
Executive Director Fiona Stanley and Fremantle Hospitals Group,
South Metropolitan Health Service
Submitted on 13/02/2024 at 12:27 PM
Published on Care Opinion Australia at 2:21 PM


picture of Neil Doverty

Dear ChildfreeByChoice,

Thank you for reaching out and sharing your story via the Care Opinion Australia platform. I am sorry that the delay in a surgery date is contributing to your PTSD, Depression and Anxiety. I would like to get a better understanding as to why you were not placed on the waitlist at your first appointment, as you mentioned in your post. I invite you to contact our Patient and Family Liaison Service on 6152 4013 during business hours or via email FSHFeedback@health.wa.gov.au with your information.

Kind regards

Neil Doverty

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Update posted by ChildfreeByChoice (the patient)

I've now been waiting for surgery with the Gyno department at Fiona Stanley Hospital for 15 months. Every menstrual period I tell myself ..."This might be the last one that feels so horrible, hang in there!"

Every day I'm left in this state of overwhelm is time I'm wasting my life away. I feel left behind to suffer in pain. All my hopes and dreams are on hold waiting for relief. The last period I had was the worst so far. There was only 14 days between periods this time. I cried myself to sleep. Even having administered THC oil, CBD oil, paracetamol, a ketorolac injection and using my TENS machine... I was still in pain. And to make things even worse, all 7 days of the period felt like day 1, there was no improvement of the pain over the period days.

Every period I feel like I'm being traumatized over and over again. The ketorolac shots aren't covered by Medicare and are adding to my financial stress. My other conditions are getting worse and worse alongside them...PTSD, Depression/Anxiety, hypertonicity (fuelled by the PTSD), my allergy symptoms, the bruxism..... I'm devastated. There's very little I can do to improve the other conditions, but the gynaecological issues can be improved and even potentially cured by surgery and just left here waiting. And considering how much relief the surgery can provide, all my other issues could improve as well.

I feel so betrayed by the public health care system. Just because I'm too sick to work and therefore poor, I have to keep on suffering?? It's not right. It's not fair.

I gave verbal consent to place me on the waitlist for surgery in May of 2023. I was not placed on the list until this year. I never got an answer as to why this mistake occurred. I completely disagree with my being allocated a "priority 3". I've explained over and over again how horrible my quality of life is! 15 months of waiting for surgery while being in such an awful state is disgusting. I am disgusted with the way I've been treated. And I can only imagine how many other people are in the same boat.

And the beautiful irony of it all... The longer I'm left untreated, the longer it'll take me to heal physically and mentally. So the longer I go without this surgery, the more treatment I'll need in the future. So everyone loses.

Something has to change. This isn't good enough.

Response from Neil Doverty, Executive Director Fiona Stanley and Fremantle Hospitals Group, South Metropolitan Health Service 7 months ago
Neil Doverty
Executive Director Fiona Stanley and Fremantle Hospitals Group,
South Metropolitan Health Service
Submitted on 12/09/2024 at 3:29 PM
Published on Care Opinion Australia at 4:25 PM


picture of Neil Doverty

Dear ChildfreeByChoice,

I can hear the frustration in your Care Opinion post and I apologise for the wait you are experiencing.

However, again, I urge you to contact our Patient and Family Liaison Service so that we can properly look into your care and treatment.

I have flagged your Care Opinion post with our Surgical Specialities and Women, Children and Newborn Service team, and there is not enough information in your Care Opinion post to identify you. I understand that the Care Opinion platform enables anonymity, however we are unable to offer you an investigation into your care unless we know who you are.

I do hope we hear from you soon.

Regards,

Neil Doverty.

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